Hi and welcome back....so sorry u r having such a bad time......
The leak could be causing u to feel like that...what have they done to stop the leak? A blood patch?....
Another issue could be cerebral ptosis....have they done a MRI since u had a leak and an infection? What type of dura patch did u have?
And lastly did they rule out Ehlers-Danlos? Some have it pre op, but find out post op...it can be the reason for a leak and even an infection, plus with a lamenectomy it can also cause cerviocranial instability to worsen....so, u feel worse.
So it really depends on what is going on....and how they treat it.
Thanks, SelmaS! No, they thought the best thing would be to let the leak heal on its own with bed rest. I had an MRI earlier this week that showed there was still fluid, but the amount of fluid had decreased. I had a bovine dura patch. thanks for all these suggestions! I'm going to start some research!
I had a CSF leak yrs ago after I had my DD....and mine sealed up but I was flat for everything except to go to the bathroom....I ate laying on my side....no fun....but u have to say down....I was down for 5 days.....
Good luck to u <3