I have never had any accident barring one bicycle accident when I was 13 that hurt my abdomen part which was healed in a week without any hospitalization or even drugs. I am 30 now. If I do not have Chiary or bulging disks are not causing it I really don't know what it is. I do have "tiny hemangioma" according to radiologist on my Thorasic spine at T10 but it is so far. I suppose I can have some reason like compact cord for uneven CSF flow. I read that some are congenital and they don't really cause symptoms but I HAVE symptoms! If it is idiopathic it has to be crazy because they are even rarer I guess. Do you know how many people have this condition? Just the syrinx? I read it is as rare as only 40000 in US have it. Now, why couldn't I have won a lottery?! Those odds are better than this!
Symptoms of a syrinx and even Chiari can come and go, and sometimes because it changes so drastically we are not aware when we are actually having a symptom of it....
Your Dr is better able to answer your questions....I did not have a syrinx and many that are DX'd with both Chiari and a syrinx have had surgery.it is those that were only DX'd with a syrinx that may not have surgery as many times the syrinx is too small for a shunt or stent.
May I ask, have you ever had an injury to the area of your spine where the syrinx is located?
Thank you for taking time to read the report. What are my chances if I do not have Chiary? I do not have classical symptoms of Chriary or Syrinx if you discount on and off numbness that is not bad on left hand and foot. After reading several posts and stories it looks like lot of people either do not undergo operation or they can not. I reality what is the outlook I am going to have? Is there higher possibility of surgical intervention and stopping the progress? How bad is this disease? I fear if it will bring disability on me in few years? I hope not.
I did make an appt with Dr. Chitale after hearing from you. It is next week so I think I will learn more.
Ok it is saying the cerebral tonsils were where they need to be....etc...and it does not mean it is not Chiari as not all with Chiari have a herniation of the cerebral tonsils that are measured properly or the Dr being aware at what point it may be causing issues/symptoms.
I am not sure this report is helpful....the MRI itself may be more relevant in helping you get more answers....many Chiari specialists will review MRI's and let you know if 1- you have Chiari ,2- or any other related condition visible in the study.3- if you do have Chiari if they can be of help to you
If you take a look at my profile now, I have uploaded the report from radiologist. Please let me know what you think. Thank you.
Yes I have copy of my report. I will post it here.