Update for Rahe

[deadmemory]

I just spoke to one of Rahe's friends just now. She is out of surgery and is in recovery. Everything went really well and she is expected to stay in the ICU for 2 nights and spend the rest of the week in the hospital. I will post more if Rahe or her friend calls again!

[deadmemory]

Hey Sheila,

Hope you're feeling a little better today.. Sorry I didn't text you back, I don't want to wake you just in case you're sleeping :)

I just wanted to say that everyone on this forum is amazing. It's so cool to see so many supportive, caring people. Although having Chiari is no fun, I just wanted everyone to know that I feel very blessed to be a part of this Chiari family. It feels good to know that if I need to vent or complain or whatever, my Chiari family is there for me. I am sorry I haven't been on Medhelp for so long to be supportive to the ones who need it, I am still figuring out all my medical stuff. Just found out that on top of the multilevel DDD in my C-spine, I have arthritis too (C-spine and lumbar) the good news just keeps on coming ;) I am also going to look into finding out if I have EDS. From what I understand, my right hip bone is tilted forward and its causing L1 and L2 to reverse. No wonder my back has been killing me..
Also, I passed my kidney stone.. my ureter is still swollen and inflamed but at least the stone is gone :)
I hope that my new specialists will help me. Especially pain management. I feel very blessed that my new doc even made those referrals. He seems concerned. I have been having diverticulosis flair ups lately too. I don't know what I should do about it. It is quite uncomfortable. I don't know if I am mistaken but I think I read that people with diverticulosis usually has EDS.. and Mel said that my hip/spine issue sounds suspicious as well.
Sorry so long. Just wanted to update everyone. I am well, and I think of my medhelp friends all the time. I hope you are all well. I will try to get on more to lend suport for the ones who've shown support to me.
I appreciate each and every one of you.

Ps. Jake said if I am feeling better then he is taking me to see my fav band, Slipknot play on July 3rd.. I told him that I was feeling better (LOL) it will be my anniversary present. Jade and Jester (my pup) are doing great too.. both are growing like weeds.
Love, Krystal
Xoxo

[selmaS]

  Hi...I know what u mean with being comfortable...I can not imagine how u feel about ur little ones not being there, as mine as grown and I welcomed the quiet post op...I was so sensitive to noise....I did enjoy seeing her at the hospital tho...but also knew it was impossible for her to be at my place...so, different places in being a mom....

But back to the comfort...try using pillows to sit on while in the recliner...soften it up...I had to make it softer and it worked better.

Once u r comfy, u can close ur eyes and imagine the little ones there with u, and that should help u sleep...do u have windows live or google plus? they r free and as long as u and the person at the location they r at has a comp with a camera u can chat with them....

U still need to rest to get better, so try the pillows, and sleep zzzzzzzzzz

[Rahe28]

Thanks to all of you. I am having  a hard time today. There is so much that I want to do....and cannot....and that really isn't what is getting me down, I REALLY REALLY miss my two little ones.. I have my oldest son here with me, and that  is wonderful....but I miss them so much.....I just want my babies home. This is the longest I have ever been away from them.
\Thank you all for sweet thoughts and prayers. I know this is a long road. I am trying to sleep alot, but I cannot get comfortable anwhere...my bed that is stacked up like a hospital bed. My recliner...couch....NOWHERE.....So, I am VERY tired.

[selmaS]

  WOW... u do indeed have a wonderful hubby....
a lovely testament to ur relationship.

I am glad they figured out a meds schedule for u that is working, and sleep is the best thing u can do right now, and sleep is part of the  healing process.

I could not be separated from my heating pad post op either...still love it, it does help relax those tight muscles that can cause pain.

Keeping u in my prayers : )

[DechenDolkar]

Thinking of you and hoping you can get your pain under control. I hope with everyday you feel better!

[Viva001]

I'm so glad to hear that you are recovering so well, and that your hospital experience was so positive!  I think your environment has a lot to do with recovery, wherever it is.  
I hope you continue to grow stronger & have less pain every day.
Vivian