That sounds about right...I get the same type of headaches a lot and it is believe to be from cranial nerve damage and weak muscle around the eyes...causing a lot of pain from just trying to see things..
I'm glad you have a different NL and I hope that he will be better for you..
Good luck!
Carolyn
That's great that he is going to help! The monitoring seems normal for Pineal Cysts...
That is wonderful that u have someone that is listening and trying all options...and doing testing to monitor....
Please keep us posted on how u do with this new neuro and the next MRI !!
"selma"
Just updating everyone. I went to see the NS and he suggest we watch it my cyst. I have to go back and see him in three months with a new MRI, which from reading, I thought he would say. He does however want to help with my headahces which is a blessing. He is sending me to his Neuro, with what he thinks is Occipital Neurelga(sp). He asked me my symptoms and I told him, he put his hands on my head and could feel the tension/right where my headaches start, and suggest my muscles are over taking the occiptal nerve, which inturn are causing my headaches. He asked what my other Neuro said and I told him he really didnt listen to me, and shoved meds at me. So he then asked me if I would see another Neuro and I said I would if he would help me. So I have a Neuro appt. for the end of the month.
Good luck!!! Please do let us know what you find out.
Carolyn
Good luck Jen !!!!
I pray this dr is a good fit for u and is able to offer u some form of relief.
"selma"
Well I have a appt. to see the Neurosurgeon on Tuesday. Not sure if thats good or bad that I got in so fast. But I will take what I can get due to my horrible headaches. Wish me luck I will be sure and update you guys next week.
Jen
Hello
Well, I am glad you are getting to the bottom of it...thank goodness for the dr and the great explanation. Please give us an update on what is going to happen from here!! Even if it's not Chiari, we would all like to know how you are doing :)
Carolyn
Here is what my MRI said: There is a cyst-like pineal gland measuring 11.5 MM maximum diameter, unchanged as compared to prior exam. There is possibly slight capsular enhancement surrounding the pineal gland, however, the enhancement could represent simply displaced vessels of the galenic system.
Just wanted to let you know that I have Chiari and also a Pineal Cyst...Mine measures 11.5 MM at the largest part. When I was told I have this about 1.5 years ago the doctor said it needs to be monitored every six months to ensure it's not getting bigger. MRI's (3 - since I wasn't told about it until 2009) since 2004-now have showen no change so I was told I can go every year or two between MRI's.
I really don't know much about the Pineal Cyst, could you please keep me informed about what your doctor says?
All the best!
Yes the Dr. did answer me and Thanks Dr. I am currently looking for a good Neurosurgeon in the Hampton Roads Area. My Doctor sent my report to the Neurologist and he suggested I go to a Neurosurgeon, so thats where I am going. Thanks everyone for all your help.
Hi I am so glad u posted an update on ur MRI...it seems the Dr from the Neuro forum answered u better that I could have.....
Please keep us posted on what u find out and the progress u make health wise as well as treatment wise : )
"selma"