I recently got diagnosed with Chiari and Syringomelia. I want to thank you all for this forum, I have read alot of the posts in the last few weeks. Honestly, I can not digest too much at once because it is overwhelming. But, I have found out thur your posts and the " you know you have chiari" thread, that all these years I knew something was wrong. From the throbbing in my head like Fred Flintstone, to the random muscle cramps to the numbness in my back that they said "shouldn't be there",NOW I know I am not crazy! lol. Thanks and I will continue to read and absorb info from you fine people!
I have it also Tanya, I am currently on no meds and have not had surgery yet. I have had it as long as I can remember, but thought everyones ears did that...much like my other symptoms!
Absolutely, Tayna, I do have constant ringing in my ears. Better at times worse others. It seems when things are off kilter in my head the ringing gets louder. When I'm feeling good it gets rather faint. It never completely goes away though.
Now as for 'You know you have Chiari when...." your shoulder feels as though it's been doing way more than it should have been yet you've yet to get off the couch.
CW
Hi and welcome to the Chiari forum.
Glad u were able to laugh at the comments...I hope that it didn't hurt too much...lol....
I hope we r able to offer ne answers to questions u may have.
Hello. I have just been diagnosed with Chiari's this week. After looking at these you know you have Chiari, I find myself very able to relate to many of them and laughed at many of them. Thank you for the humor.
Hi and welcome to the Chiari forum.
Thank u for sharing the name of a NS that is experienced with Chiari....please add the name to the list of Drs thread so all the names are in one place.
May I ask how long ago u had ur surgery?
The tinnitus can be from meds, but I have had it all along, it went away post op, and slowly returned.....