My son has chiari, but we are in all the learning stages right now of all this. I am learning that of all the symptoms he has are all I am reading that are with chiari, just never put it all together until now. My son gets very hot and wakes up through the night soak and wet with sweat. He is always burning up. He has an appointment in the next week with his neurosurgeon. But I am reading about a syrinx, we have never been explained any of this. Wondering if you could explain a syrinx?
I in fact have 1 large in the neck and 2 more.
:-) I guess I don't have the ice sensations since I live in Atlanta where it already seemed hot to me even before these symptoms started... do you have a syrinx? I seem to have heard a few times that the syrinx contributes to this?
For me it feel like I am on fire or high fever sometime and other time like if I was sitting in an bahtub filled with ice.
Glad that worked for u : )
We have to invision things that r not scary so we can remain relaxed.....I got so many MRI's I could fall asleep inside...with out being sedated....lol....
The brain and cervical MRI showed no syrinx. I had the thoracic and lumbar MRI's this am & should be able to get report in couple of days.I did take a sedative for this am since it was back to back MRI's all the way in tube - I would recommend that :-) also prayed while in their for someone going thru worse issues than me! Selma I liked your suggestion about pretending to be listening to road work that made me smile inside the tube.