I know what u mean, my niece just had a little girl with MMIH and it is very rare and we r still trying to find out more about it....it seems to affect girls...and not sure she has a good outlook.
It is frustrating as well as scary not knowing....and I can only imagine what u and my niece r going thru.
I pray these tests open up a field of opportunity for the drs to offer help.
"selma"
hi ye know my daughter had this test done several years ago and it was ok,when we went to alderhey yesterday tho i must admitt im scared,he told me there and then he is not goin to lie to me but he is quite concerned. 18 years of being a mum to my girls and seeing them go through ther problems just breaks my heart.my eldest daughter i lost but to see my gorgeous daughter now hurting and seeing her illness affect her whatever that may be because doctors arent really sure what is causing her problems is just something i cant get my head around.her muscles,her spine etc..but she is so lovely.its not fair
Hi...I had the nerve conductor tests done they r called EMG's...it is to look for nerve damage....it is helpful to the dr to know what they r looking at.And with ur DD's muscle issues it will help show the diff btwn the 2, mayb even show which symptoms r from which condition....
The more tests they do the more info to help ur DD.....
I must admit, I did not like the EMG test at all....but, I did get thru it.
"selma"