CM mimics???

[dkdean]

Heading in to see my PCP today for bloodwork/urinalysis and to check into making sure that there isn't anything else that can be contributing to my CM symptoms.  On my list to ask about--B12deficiency, POTS

Other ideas that I should ask to be tested for???  Lupus was ruled out last March ('10) as was Factor 5 (March 2010)--should I be tested again?  The reason we are looking into other issues is b/c my CINE looked fine...but my symptoms are progressing at a dizzying speed(pun intended!)--esp since an episode the first weekend in March where I lost full feeling in both arms and face for about 12 hours.  After that, some feeling came back, but my symptoms have been a lot worse.  But really--temp lobe surg in Dec, symptoms pretty bad from JAn through now...

Ideas in the next hour are appreciated!!!!!!!!!!!!  Thanks!!!!!

C&P from an email for symtpoms (although, I can now add falls to the list--that is new in the last week):

Symptoms I am attributing to CM (currently daily): visual disturbances (halos, no night vision since early January, goggle vision, watery vision, floaters, shadows, hazy), dizziness/vertigo (15-30 mod-severe episodes daily), numbness (fully in rt hand and lower forearm, left fingertips, and various spots on body--inconsistent with various spots--consistent with loss in fingers and rt hand and forearm), loss of taste (except for back of tongue--since early March), cold fingers (since early March),

A symptom that doesn't seem to be a CM symptom but is occurring with more regularity--with writing and speaking--I will start a word and use the first 2-3 letters and finish with a word that completely doesn't fit.  Ie. stretch for street; walk for water  It occurs in both written and oral language and is not an issue I have ever had before.  I did struggle with writing and word finding (in written and oral speech) in the months following surgery but in a more global sense. (ie. Hmmm....I know what I am trying to say, but what word am I trying to use to say it????").  

[selmaS]

  Just a thought as I am investigating P.O.T.S. for myself...but u may want to look at it too....many of the symptoms r very similar to chiari and to what u describe.

I know not a lot of us r tested for this....but  quite a few do have it in addition to chiari as it is a related condition.

But I still stick by the fact u need to give urself time to heal and that it will take time and affect ur whole body.

Keep us posted
  "selma"

[dkdean]

As always, thank you Selma!!!!  I cannot thank you enough for all of your insight!!!

[selmaS]

  Hi...I know u feel the written and speaking issue is not chiari, but I beg to differ, there r way too many of us having this exact same issue.

As for ur other issues what might be going on instead of chiari.....?????

I know what I was tested for to be sure my symptoms were chiari...Lupus, lymes, MS....many chiarians do have issues with auto immune conditions as well as connective tissues disorders...so disk issues can be a factor....Ehlers-Danlos....

And as I mentioned b4, ur last surgery created a trauma to ur entire body from which u r still recovering......that ion addition to ur chiari could explain how and y  u feel as u do.

  JMHO
"selma"