I posted about the MH newsletter....you should as a member of MedHelp get one...there will be an article in it that you all will want to see.
Thank you, Selma for the information on the July conference. I will plan for it.
Frankie, please tell me what MH newsletter is. I love to read. I am also doing the walk on September 20 in my hometown since there isn't one organized where I live now. I am really looking forward to meeting so many people that will feel the way I do!
Go Frankie !! Fantastic... !!!
Watch for the MH newsletter.....
Organizing a walk for Sept 20, 2014
They tend to hold them in July each yr, I will PM you info on next yrs when available....
I would be very interested in learning about conferences. What a wonderful opportunity.
Looking for more Chiari awareness ideas...what are you doing?
Those are great ideas !!
Wish I had a walk closer....there use to be one back when I first had surgery and could not go, now I would like to and there isn't one...Philly is too far to go...but if push comes to shove I just may beg someone to take me...lol...
I went to a Chiari Conference and it is an experience to actually meet face to face with others that understand what we are going thru.
A wreath of purple flowers, with a big purple bow, greets everyone who comes to my front door. Purple ribbons are my favorite things to give in order to raise the public awareness of Chiari Malformation. I gave a purple ribbon to the Federal Express lady delivering tickets to the local symphony that my husband ordered, and my son put one on my mailbox for the mail lady. I am going to visit a local business on a busy street and ask the building manager to turn their fountain water purple. I gave ribbons I had made to my son to give to his three teachers and friends
The thing I am most passionate about is the Conquer Chiari Walk Across America. I will walk with my father and sister in Philadelphia on September 20th for the Walk. Being together in one place with so many kindred souls will be magical!