I'm sorry you're having complications! were you diagnosed with chemical / sterile meningitis? That was one of my original complications from the first decompression and from what I understand the inflammation limits the absorption of CSF and for me it caused secondary communicating hydrocephalus for which I'm shunted. It is not a perfect solution! but when it works, it really, really works. The idea of more surgery is so daunting! especially when it comes to cutting your f*ing head open AGAIN. I broke down before my last shunt replacement. But I also realized that I can't live with the pressure. Have you had a lumbar puncture to check for inflammation? if anything they could try another round of steroids.
I just posted re the same thing. I am two and a half years since decompression surgery and was pain free all of that time. Now I am experiencing that same awful pain when I get up, cough or sneeze. I do not want to think of this coming back. Any suggestions as to what my options are anyone?
Has the leak resolved? If not, your pressure will continue while you have a leak.....
I do not remember exactly how long the pressure issues were post op...but I know they lasted for some time.....
I don't like it when I think something sends and doesn't! Happens often to me! If I were you though I would call them and mention it. It may be nothing to be terribly concerned with, but it may not be and its better to be safe than sorry! Let us know what you find out. Crossing my fingers that it will be all good news!
Hi gjjl! I can certainly understand being concerned since you've already had a leak repair. Have you called your NS to ask what they say? For me the pressure kinda never really left although I had some times where it was better. I'm pushing 8 months post op and the last several months have been almost unbearable with pressure and noises in the ear and stuff. I'm very confused with this myself! I really hope you start feeling better soon, you've been through an awful lot!