Myofacial Pain - Please Help

[skheavner]

I have a chiari malformation and had decompression surgery where they remove my top vertebrae.  After the surgery I got better, then worse.  My neurologist sent me to a Rhumatologist who said I didn't have any Rhumatology issues while I was in the office, then I got a call from his office stating he sent a list of myofacial pain medications to my neurologist.  I don't get it.  Do I have this pain? I have severe pain in my neck and head - pressure that spreads to my shoulders and sometimes shooting pain into my arms.  Pressure relieves pain for a moment.  I have recently been having lower back pain also that sometimes accompanies shooting pain in the legs.  I thought this pain was due to Chiari and effects of the surgery as well as nerve pain.  Why would the doctor say everything was fine and then recommend a myofacial medication? Please Help

[selmaS]

Oh ok....r u sure it is not something to do with muscles?....hmmmmm I really am not sure about that....

"selma"

[skheavner]

When most people straighten their arms it makes a straight line, my husband says mine are at 160 degrees instead of 180.  It is not obvious unless you look at it.  I was told it was a birth abnormality a long time ago but I can't seem to find anything about it online.  I guess my best description is that they don't hang straight nor can I force them straight.  They kinda look like a wide boomerang.  If that makes sense...

[selmaS]

I was around the same age and in a MVA.....but the straightening of the lordosis is most likely
undx'd whip lash.

A good PT should be  able to help u with some of those muscles...as it can be part of the pain u r dealing with...I know once I had mine addressed I felt a lot better...not perfect mind u, but a  lot better.

I am not sure I know what u mean...ur arms r always bent?..and to what degree?

Not sure I really know what u mean on that one....

"selma"  

[skheavner]

I was in a MVA very young and I was never diagnosed with whiplash due to it, but I refused transport to the hospital as I didn't think anything was really wrong (I was 16 and it was my birthday).  It is strange that we both have numbness of the left : ).  It seemed like I might have slight bulging but I have a new MRI this week - I will let you know how it goes.  I have never had PT as my doctors seem to think that it won't help, but rather harm.  They just prescribe meds...it dulls the pain but it still always there.  It is horrible.  

I had another question - a long time ago a coach noticed that my arms to straighten all the way, they don't hurt but they don't fully extend.  Could this be related to the Chiari as a congenital defect that is related?  Maybe some of my bones didn't fuse all the way?  I have never had my arms looked as because there is no pain, but I thought it could be related.

Thanks for all your help!

[selmaS]

Did u ever get a dx of whiplash?...were u ever in a MVA?....I also had a dx of the straightening of the cervical lordosis ...mine was due to whip lash...I also have mild scoliosis.

What I also find weird is my leg numbness was my left leg as well....

Do u know do u have ne bulging disks?

And did u have ne PT for the muscles at ur shoulders for the lordosis?that can be very painful as it causes all the muscles to twist....

"selma"

[skheavner]

The pain is the same as before the surgery, pressure in my neck and head (back of) that radiates to my shoulders.  I don't really have muscle pain, sometimes in my neck but I figured that had to do with the fact that I don't have a top vertebrae... I also have spasms occasionally but I have reverse lordosis of the cervical spine - or straightening and mild scoliosis.  The EMG was only on my left lower leg as I have had sever numbness, not just tingling but I actually couldn't feel it. I have also had low back pain that is new and shooting pains in arms and legs but only when I already have neck or back pain - like they are connected.  Thanks " D

[selmaS]

Hi..the EMG was it on ur legs and arms?.....I had it on just my legs....

Well u may want to get checked for EDS as well.....just to rule it out if nething....

Is the pain after surgery HA's as well?....or just muscle pains?

"selma"

[skheavner]

I don't think I have been tested for  Ehlers-Danlos but I have been diagnosed with hyper flexia

[skheavner]

The nurse wouldn't tell me what prescription he recommended to the Neurologist.  I have been on lyrica and a few other "fibromialgia" type pain meds before diagnosed with the Chiari.  I have a MRI of my brain c and L spine next week.  My neurologist has been looking for something other than the Chiari for the increased pain, but he doesn't seem knowledgeable in issues related to the CM.  He did an EMG and nerve and muscle tests but still has not told me anything or any ideas he might have...I feel lost and my pain is getting worse.  Surgery made it better for a few months but the pain now never goes away and at times is unbearable.  I am on narcotics and muscle relaxers and they dent the pain but it never is gone. : ( Thanks for the help