twitching anyone?

[kricklekrin]

Can anyone tell me if they experience head or face twitching with their Chiari?  I'm having a lot of twitching near my temples, very annoying.  

[selmaS]

A good friend should be able to tell by looking into ur eyes how u feel, and know when u r lying....if they don't, they r not paying attention.

I was fortunate to work with someone for 8 yrs that only had to look at me to see I was in pain...she said my eyes got glassy...so I never had to say a thing.,...it is nice when that happens.


neava-I am so glad to hear I am not the only one with the flashing lights : )

"selma"

[kricklekrin]

So, sounds like the twitches are a symptom of Chiari.  Yes, not painful, but annoying.  

How about muscle spasms.  Probably TMI, but I get them in my buttocks, and then pain down my legs.  

You guys are so funny.  Some days are not laughable, but I try to laugh at some of my symptoms, or I think I'll go crazy.

One of the hardest things to deal with is how little people understand about this condition.  I feel like a big liar these days when people ask how I am.  "Oh, I'm good how are you?"  What I want to say is my head feels like it's about to explode and the room is spinning, how are you?   I just don't talk about the Chiari, because they just don't understand.   Everyone expects me to be super woman, just like I was before these symptoms decided to take over my life.  Anyways, long winded.....

[neava]

i get twicting over body, even in my groan, i sometimes get like feeling like bugs are walking over my head, it goes once i touch it, then back again,
i get the static look at night also, i was stearing in the dark lastnight,thinking thats weirld,


selma
i also get flashing of lights, makes you look twice,

[blondeballerina07]

ALL THE TIME!!! My leg muscles are the worst, I have had strangers say to me do you know your thigh is twictching. uhhh?!?! I do thank you for pointing it out! But my eyes twitch, the right side of my mouth, my forearm, my calves, my thighs and hamstrings also twitch. THANK GOD not all at once. I also have tremors so maybe that is part of it i don't know but it sure is obnoxious!

[FeyShadow]

YES to the twitching.  Everything twitches.  It's annoying as Heck one minute, then just funny.  My fingers were twitching so badly the other day, my "kitten" (she's a bit developmentally behind... someone apparently threw her out of a moving car when she was about 4 1/2 weeks old, so has brain damage) decided she had a new toy and kept attacking them.  The worst, though, is the eye twitches... nystagmus, I think it's called?  Don't know, exactly, if that's what it is or not, but it's like my vision absolutely vibrates, only way to describe it.  VERY annoying.  Does anyone get a twitch-like feeling in/around the spine???  Thought I'd ask.

Scottie

[lilmiss1999]

I have the twitching in my lip and around my eyes. also in my legs and hip ares. Also in my forearm and back of arms. no pain like you said, just annoying.

I get the flashes like when a car passes by and the sunlight is reflected off the windshield. It happens during the day and at night when im in bed with my eyes closed. also sometimes hard to sleep because of the light show going on behind my eyelids. dont know how else to describe. when i close my eyes I get areas of light that seem to roll over my eye then a dark area and then the light again. will do this over and over. I actually watch it. probably sounds really odd....and it IS! I have to remind myself my eyes are closed and it cant be seen by anybody else.