PRAYER THREAD ~~~~czpdx

[selmaS]

Hi all please wear ur purple to show  awareness of chiari and support our member as she is heading in for PFD surgery on Thursday, Aug. 2

Sending Good vibes ~~~~~~~ and prayers to her and all in charge of her care

and sending healing MoJo for a smooth recovery <3

[Viva001]

Glad to hear from you.  I hope you feel better soon.  My, what an experience!

[czpdx]

Hi all! I am two weeks post-op today and am just now feeling able to write a short note here. My surgery was very different than expected, but went well overall. It turned out that my pseudo was not caused by a slow leak in my patch, but rather a tear the size of a quarter. My new NS said he'd never seen anything like it -- my brain was exposed and the CSF was "openly communicating" with the fluid in the pseudo. There were also numerous adhesions, which he spent hours separating (cerebellar tonsils attached to patch, dura, and muscle tissue). He used a lumbar drain for the first week and I spent the first five days laying completely flat -- no exceptions. Not fun! After eight days in the hospital I was allowed to go home. I've mostly been resting. My post-op is this afternoon and I'll get my stitches out. I've developed a feeling of motion sickness and a little swelling, so we'll see what the doc says about that. Hopefully I'll get to keep recuperating at home!

Thank you again for your healing thoughts!
Claire

[DechenDolkar]

Sending well wishes, prayers, hugs and healing energy!

[Sexybare]

Try to relax today and this evening. Will be praying for everything to go as planned and for a smooth recovery. Hugs....Dana

[Viva001]

Thinking of you and sending best wishes your way!

[selmaS]

  No worries Claire...remember to have someone post updates on ur progress

[czpdx]

Thank you, selmaS and everyone else! This means so much to me!
czpdx/Claire