Oh and eds can have things go with it too like mcad (mast cell activation disorder) and POTS disease ... the lyme disease thing going around on the net seems like a scam preying on suffering people.. they are always pushing to test with igenex testing labs so I quit going that route.. got to looking on that particular forum and it's always the same people speaking up about it too.. people are getting a lot of false positives from that way. I read an article where a guy died from lupus that got a false pos from them.. FDA is investigating I believe. Just be careful..a lot of people like us are taking antibiotic treatment for lyme and not getting better
Maybe some of you should check ehlars danlos syndrome too.. could be a possibility. Just my input. You would need to see geneticist for this.. I'm having issues too just going thru the motions praying I make it to a diagnosis or God takes this away from me. I hope all of you feel better.
Hi Guys, I had couples of these things, I my sister has Ankylosing spondilitis. I had 2 knee surgeries when 13 because of sport and both shoulders injured while working out too heavy weight.
So when some symptomes started to show up in my lower back and then all the (cracking, poping, grinding : mostly neck+back, hips, knees, shoulders, fingers) I started to think Spondilitis for me too... So started to, gluten free, starch free, sugar free, dairy free, and nightshade vegetables free diet, and I was doing some 24h fastings once a week. The poping and grinding continued ( mostly in my right knee and the crepitus in my neck) but pain was very low and I must say I felt good from starting eating well, even though I had these small symptoms.
One day I ate pizza and no bad feeling at all.. so I progressivly started to eat stuff like bakery, pizza cheese and milk and all those things I had cut and nothing bad happen. So 2 weeks of bad food I now my shoulder is grinding and poping like hell and started to feel pain in my elbow too( where I had nothing).
So I will start againthis diet hoping it will help a little.
I go check for Lyme because someone here suggest me too.
My conclusion, could be these possiblities
- Bacterial infections
- Lyme
- Ankylosing Spondylitis + causing osteoarthritis
- Degenerative Osteoarthritis of the spine and all over body
- Rheumatoid arthritis
- Lupus
- Osteoarthritis caused by injuries
- Osteonecrosis caused by injuries
If anyone has some suggestions to disease it could be, type it here. I still come in this thread regularly. Hpe They will find something soon! But remember Your body is not you, It is only a recipient for your soul! We all have souls trap in deficient body, but we most keep our soul clean and not fall into depression. I try hard to not see this as the end of the world, but we most focus on good things. And we never know maybe science will make a discovery us out. There is people out there who feels no pain but can only wink there eyes.
Hello guys are you still alive? lol I feel like I wont live too long, maybe couple of years more... thank god I found this thread. I am 35, 2.5 years ago it stared. Little clicks in my knees, within months spreaded to all of the joints. At the moment back, knees and shoulders are the worst because I use them a lot at work. I work in a docks. Last 2-3 months constant upper back pain, pins and needles and stinging like, possible trapped nerve. Other joints that click and grind are: ankles, hips, wrists, elbows, back&neck and even chest. (shoulder blade grinds) 4 years ago I had very stressful time, I did not sleep well or long enough for years because of stress or work (shift work). 4 to 2 years ago I was on blood pressure tablet and have been drinking alcohol too often at the same time. 7 to 5 years ago I was an anabolic steroid user. I have many root canal treated teeth. That is all about me. I have had bad headaches before the joints started to play up, thought it was because of blood pressure or hang over after alcohol. Those headaches come with very stiff neck. Lately endocrinologist I contacted told me it is all cos of steroids use and related collagen problems that build all soft tissues including veins ( I have got some minor leaking veins I can see on my legs) fair enough I thought but I was still not sure, can not trust just one doctor.
Oh, and I have GERD, or at least hiatus hernia. Really bad reflux occurred several moths before problems with my joints. Once joints started playing up ginecomastia occurred as well. Is that due to blood pressure tables, I do knot know yet, still got it.
Reading above posts I can see I had very similar possible thoughts about of what it could be.
1) GERD - increased acidity
2) Lack of nutrient (due to coeliac disease or something else)
3) metabolic acidosis
4) EDS
5) Root canal (apparently teeth has got many other very tinny canals that are connected with other parts of the body and bacteria living there produce toxins after the tooth is canal treated.
6) connective tissues disorder/degeneration after use of steroids
others after reading this forum
7) Someone mentioned a possibility of damaged nerve in neck that could cause all that. That is a new interesting theory to me.
7) Lyme disease (done blood test for IgM and IgG, possible different names in english, result - negative).
8) fibromyalgia
9) Bacteria or virus
I personally would stand up on GERD, EDS, Root canal, Lyme or bacteria.
HAS ANYONE ELSE FOUND OUT WHAT IS WRONG WITH US YET PLEASE???
Hey I'm not a doctor or anything just a 17 year old girl with a lot of stress and the same problem, I can pop almost any bone in my body and the pain in my muscles is absolutly terrible my muscles ache all the time, I don't do any sports I just have anxiety and the pressure of my families expectations, high school, a job and collage just add to the anxiety. I can't get enough sleep because of the pain I'm in but it seems to ease up a little when I eat foods with a lot of magnesium in them. I guess magnesium rich foods like almonds, fish and penut butter could be worth looking into if nothing else works. I've also found that excersise whenever you get time could work to. It seems to ease the pain for half the day for me. I havnt been able to see a doctor about it so I can't really add much more other than what I've experienced.
I found this forum by searching joints popping, hip pain, etc. I'm not as bad as most here but just trying to avoid getting worse and educate myself. I'm 59 so I can expect some pain, bones popping.
Doctors just guess about everything and in the end blame it on Fibromyalgia.
But what surprises me is how young many of the posters here are. Just a guess but there has to be more to this. Perhaps some of the shots the younger generation is getting, i.e. GARDASIL vaccine, different Immunizations, etc. If not mistaken they get many different shots then I did growing up. When my daughter was a baby I couldn't believe all the shots she received. There were a few that were "optional" and we elected not to have them done.
Anyway I hope they find answers for all the people suffering.