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534800 tn?1217167359

"Golfer's Vasculitis" is more than just annoying

I'd like to know anyone who's had this hideous and annoying condition anywhere on their bodies other than ankles and lower legs - have you had it start on your ankles and then over the years progress to other parts of your body? Any remedy to reduce redness besides not exercising or walking outside?

I moved from the dry climate of the Southwest and Southern Cal to hot and humid New England four years ago - nevr, ever had this until the first summer I arrived and then BAM! A weird, nasty rash that scares even me - I'm extremely active (walk every where and run 6+ daily) so suffice it to say being covered with this is not good for the image!

Seriously though I'd like to know if there's a way to treat and how to keep it from spreading.
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Avatar universal
My first case of a rash around the sock line happened when I was around 52 years old.  It would come and go with most outbreaks in the warmer weather.  I initially would find some relief using sun screen lotions and wearing long pants.  I tried different types of socks and found no relief.  My Doctor had no effective treatment as well.  I had gone the last 3-4 years with no symptoms, but then it hit me while I was in Hawaii and 60 yrs. old.  Nothing I tried seemed to help.  After I returned home to Arizona I started searching the internet.  One comment said they tried an over the counter steroid cream and they had found some relief.  I tried Benadryl and it only gave me slight relief.  I decided to try and exercise my lower legs to increase circulation and I started to use an over the counter cortisone cream.  This has given me a dramatic improvement.  It worked for me, so I hope it works for you as I know how aggravating this condition can be for people.
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Avatar universal
update from ontheh2o - 9-1-14 - Went to another three day drag race.  Changed a few things this time.  No salty snacks, no socks, no shoes this time.  Added better hydration, claritin, ibuprofen, sandals and icing my ankles down immediately after walking for any duration.  Wow, did this improve things!  I made it through the whole weekend with just a few tolerable vasculitis spots on my feet, nothing on my ankles (where it gets painful) and just a few spots on my calves.
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Avatar universal
Early this summer I decided to get in better shape and start walking the golf course. I'm 57 and walked 18 holes on a hot day. The result was that red rash on my lower legs that took three or four days to go away. I got it again the following week after walking the golf course, which sent me running to the internet and this site. With no real cure for it, I decided to experiment. My next time out I got rid of the high socks that went above my ankle. I replaced them with short socks that barely come up out of my golf shoes. I have since walked the course at least a dozen times in high heat without any outbreak of golfer's vasculitis.

Apparently the higher socks either hindered my circulation, increased the heat in my legs, or both. I don't expect this simple change to be a cure all, but it worked for me. Thought I would post it in the event it is helpful to anyone else… Perhaps I am just lucky, but give it a try.
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Avatar universal
I have developed vasculitus a few years ago. I woke up with it one day all over my feet and legs. It began to c limb up my body and a few spots on my face. I went to several doctors before a biopsy was done. They said it was chemically induced. Turns out a blood pressure medicine caused it. Stopped the meds and the spots went away. We have since found that I have an allergy to blood thinners, water pills and certain antibiotics. I haven't had a flare u p in awhile. Also I found out that alcohol and sugar alcohols in d diet food also brings them on. So my limit is 2 drinks on the weekend. But no known cure. Check the side effects of any meds you take.
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Avatar universal
Just today I was diagnosed with golfers vaculitis  I am 57 and an avid walker.
During my 30's I had 3 children, each time I was told to wear support stockings to avoid  varicose veins. Sometimes when I didn't wear stockings I would get odd leg rashes. I attributed the rashes to pregnancy.
Over the years , I volunteer at a festival standing for long hours in the heat and I would get the rashes. Now at 57, I have the summer off from school &  I would with my girlfriends and see the sights of N.YC. We ve been having a ball, but each week, I would develope a rash. A  internist gave me a prescription of predizone creme to put on the rash and it disappeared.
A vascular doctor was a little baffled saying it was a skin condition and sent me back to my dermatologist. The one thing that is consistent, is if I stand or walk for 4 to 6 hours in warm weather the rash appears. An allergist finally diagnosed it. I am having a sonogram done Wednesday just to make sure, there are no clots or other problems. I feel this is definitely a vascular problem. Even though they claim there is no cure and there is no problem having this, I find it hard to believe. I ve been dealing with this since my 30's
And when I wear light support panty hose, like sheer energy by Hanes when I know it s gonna be a long day on my feet( as I did when I was pregnant) the rashes do not appear.
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Avatar universal
    COcoNut Oil
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