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stomach pain related to type 1 diabetes

I noticed quite of few questions from other parents regarding their children with type 1 complaining of stomach aches, I would like to "add" to the list that my daughter who is 8 also complains of stomach aches at least 3 times a month.  I've taken her to her regular pediatrician and the endocronologist who have made a couple of suggestions of maybe its gas or she's irregular but this is not the case. As a parent I can see its more than that. At times she is doubled over with pain.  The best answer I saw on your site was the suggestion it could be due to high and/or low blood sugar. My question is for that reader and to you as well...Was this a proven fact or an "educated guess". It sounds like it might be the case with my daughter. Any other comments would be appreciated. Thank you.
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Avatar universal
To everyone on here I have a stepdaughter who is type 1 also and she has pains for a while it was most often than anything but after calling her endocrinologist he suggest we check her keytones and every time her stomach hurt and we checked her keytones they were always high.  All you can really do for it is have them drink water as much as they can and keep drinking water until their keytones come down.  After she drank water and water and water where she didn't want to drink anymore she had to keep drinking because after a little while she felt better.  The stomach pain went away.  Please I stress to much who anyone who had newly diagnosed type 1 kids to drink lots of water it is the cure to everything to make them stay feeling normal.  
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Avatar universal
so frustrated....my nine year old was diagnosed type 1 a month ago....her numbers are doing so good but the poor thg feels like crap so frequently that it is affectting things more than the counting carbs and shots!!! she gets numerous tummy aches every day....it is making her grumpy and difficult....endocronologist does not believe its diabetes related but started the same time as diagnosis... wth????? cant find any trends....not only with highs...sometimes shes normal...before meals after meals.....super frustated....negative foe celiacs....any suggestions?
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Avatar universal
Our daughter is in the same situation, she is 8 and was diagnosed 3 months ago.   Occassionaly shy complains of pain but it is not sore to touch.   It sometimes seems to be after a 'heavy' meal, e,g, including potatoes & turnips, but we haven't been able to see a pattern.  Our diabetes team dismissed same as being unrelated to Type 1.
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Avatar universal
My daughter is 10 and is currently suffering from all of the symptoms that you are all talking about. I will go to the doctor and see what we can find. Her levels have been high and are now stabilizing - there has been no real reason as to this. We'll go and check it out!! Thankyou to all!
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Avatar universal
I have been a Type 1 diabetic for almostt 22 years. (I am 28 now).  When I was younger, probably between the ages of 12-15, I would get severe stomach pains where I would be doubled over almost unable to breathe.  They could never find any patterns or anything wrong.  Finally they told me to take Tums at the onset of it to try to get rid of it.  Sometimes it helped, sometimes it didn't.  There were a couple of instances where my sugar was low, but most of the time it was normal.  I eventually out grew them.

Now, if my sugar is low I do get just an upset stomach, really uneasy, but is fine once I eat something light to get back up.  
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Avatar universal
Thank you all for your comments. I have not had her tested for thyroid or celiac disease.  I will definitely consult with her doctor about it.  For now I have been trying to see a pattern, nothing jumps out quite yet.  It does seem like it occurs most when she is high but not always. So it has been hard to discern whats causing the stomach aches.
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