Aa
Does having an endometrioma automatically means endometriosis?
I have various questions regarding my MRI results.
About a week ago, a pelvic MRI with contrast was done.
The report states that I have 3 adnexal mass lesions (cysts) with increased T1 signal without enhancement and with T2 shading. The cysts are ranging from 4.5 cm to 1.7 cm. It also states that the mass are mostly endometriomas.
Now, my concern is that the report also mentions a small amount of free fluid in the pelvis. I believe that is the whole point of the endometriosis and that having such will prevent me from having kids. #1: Does this mean that I have endometriosis?
I went to get the test results from the doctor but I wasn't left with much peace. She set me up to take birth control pills and that it should help break them down. #2: Is this a normal course of treatment for a condition as such?
Then it mentions that there are multiple small follicles in the ovaries which can be seen in the setting of polycystic ovarian syndrome. #3 What are the consequences of this syndrome and how can I learn about its treatment?
Any insight will be appreciated!
About a week ago, a pelvic MRI with contrast was done.
The report states that I have 3 adnexal mass lesions (cysts) with increased T1 signal without enhancement and with T2 shading. The cysts are ranging from 4.5 cm to 1.7 cm. It also states that the mass are mostly endometriomas.
Now, my concern is that the report also mentions a small amount of free fluid in the pelvis. I believe that is the whole point of the endometriosis and that having such will prevent me from having kids. #1: Does this mean that I have endometriosis?
I went to get the test results from the doctor but I wasn't left with much peace. She set me up to take birth control pills and that it should help break them down. #2: Is this a normal course of treatment for a condition as such?
Then it mentions that there are multiple small follicles in the ovaries which can be seen in the setting of polycystic ovarian syndrome. #3 What are the consequences of this syndrome and how can I learn about its treatment?
Any insight will be appreciated!
I connect on Twitter mostly there are thousands of Endosisters on there as well as Facebook. I can message you some good Facebook groups and hook you up on twitter with many girls if you decide that route too. It has been my saving grace to be honest.
Dr. Koh is one of the best surgeons in the US as per Dr. Redwine who is also an amazing surgeon. It would be in your absolute best interest to see him and have surgery with him. Not many surgeons can operate on the bowels and bladder and he can. He is great from what I hear from many Endosisters as well. I actually was just helping someone on twitter and linking her to other girls that have had surgery with him.
All Endometriosis contain estrogen so unless it is removed from the root it will continue to grow. There is a huge misconceptions about the BCP or any other form of medication like Lupron, visanne etc is that it does not stop the growth of Endometriosis. It does not suppress it, and most doctors still tell their patients this and it is wrong. The purpose of them solely is to stop the periods therefore stop the pain. So the first thing that any person with Endometriosis should do is have the best surgeon operate on the and then find something that works for them to stop their periods after. For example I have been on Marvelon 21 since my first surgery in 2007 and I take it every day. I haven't gotten a period in almost 8 yrs. I have breakthrough every 3 months and that is when I come off it for 2 days bleed a little then go back on. I would literally be so sad if this did not work for me because if I do get a period I still have pain not as bad of course but I don't want pain at all and it has been amazing for me as well as leveling my hormones. Some people can't be on the BCP because it does the opposite for them like cause migraines or some people are at risk for blood clots etc. So the key is finding something that works for you and I would recommend a BCP rather than any injection type med like Lupron because Lupron should not even be on the market.
Free fluid is an indicator of Endometriosis however not all women have it. This is something I learned from Dr. Redwine as he answers questions on a particular page on Facebook. I got to pick his brain quite a bit because I wanted the facts. I have researched Endo for years, have a blog etc. I am all over the place in social networking trying to raise awareness, teach women the facts, and also help guide and support them along their journey's in fact I have recruited a lot of women on here to twitter so that they could be surrounded by other women going through similar things and it has been a life saver for many. I love helping people here as well but unfortunately not to many people come on here and help its just me and usually someone will ask a question then never come back so that is why I recommend twitter for everyday support.
Let me know if you want me to send you some links I will message them to you :)
Dr. Koh is one of the best surgeons in the US as per Dr. Redwine who is also an amazing surgeon. It would be in your absolute best interest to see him and have surgery with him. Not many surgeons can operate on the bowels and bladder and he can. He is great from what I hear from many Endosisters as well. I actually was just helping someone on twitter and linking her to other girls that have had surgery with him.
All Endometriosis contain estrogen so unless it is removed from the root it will continue to grow. There is a huge misconceptions about the BCP or any other form of medication like Lupron, visanne etc is that it does not stop the growth of Endometriosis. It does not suppress it, and most doctors still tell their patients this and it is wrong. The purpose of them solely is to stop the periods therefore stop the pain. So the first thing that any person with Endometriosis should do is have the best surgeon operate on the and then find something that works for them to stop their periods after. For example I have been on Marvelon 21 since my first surgery in 2007 and I take it every day. I haven't gotten a period in almost 8 yrs. I have breakthrough every 3 months and that is when I come off it for 2 days bleed a little then go back on. I would literally be so sad if this did not work for me because if I do get a period I still have pain not as bad of course but I don't want pain at all and it has been amazing for me as well as leveling my hormones. Some people can't be on the BCP because it does the opposite for them like cause migraines or some people are at risk for blood clots etc. So the key is finding something that works for you and I would recommend a BCP rather than any injection type med like Lupron because Lupron should not even be on the market.
Free fluid is an indicator of Endometriosis however not all women have it. This is something I learned from Dr. Redwine as he answers questions on a particular page on Facebook. I got to pick his brain quite a bit because I wanted the facts. I have researched Endo for years, have a blog etc. I am all over the place in social networking trying to raise awareness, teach women the facts, and also help guide and support them along their journey's in fact I have recruited a lot of women on here to twitter so that they could be surrounded by other women going through similar things and it has been a life saver for many. I love helping people here as well but unfortunately not to many people come on here and help its just me and usually someone will ask a question then never come back so that is why I recommend twitter for everyday support.
Let me know if you want me to send you some links I will message them to you :)
Ticked, where do you keep in intact with your endometriosis sisters on social media? Wondering if we can connect. My doctor actually told me about dr. Koh, I live in the Milwaukee area. strongly recommending him for the removal of endometriosis that is growing near my ureters. Also, how do you know that endometrial growths contain estrogen? I did not know this. Also, do you know anything about the effectiveness of birth control (nuva ring) in treating endometrial growths near the ureters? I'm also wondering where you heard that free fluid is a sign of endometriosis. I've never heard that before. Thank you for your proactive efforts!!
This is what I have been told
"There's an amazing Reproductive Endocrinologist named Dr.Dodds who is a surgeon in Grand Rapids, he is amazing and is skilled with the best bedside manner! Plus he's the best ranked endo dr in MI and top ranked in the country, he is the best!"
also
"I went to the endo center at u of m and was not impressed. They only focus on infertility, not treatment of endo and they did my laparoscopy and they let a resident do it without my knowledge and they messed up. But my pain specialist is at u of m and he is incredible! He is at the u of m back and pain clinic and his name is Dr. Chiravuri! He focuses on pelvic pain and is super understanding"
Also
This one guy is one of the best Endo surgeons and was mentioned by a 25-30 yr advocate for Endometriosis I would go with this one as he is talked about alot.
"What about Charles Koh in Milwaukee or Patrick Yeung in St Louis"
I know some of these are a little bit further than you want but I can tell you without a doubt you want the best of the best to operate on you with this disease.
I live in Canada and will be saving money to go to Atlanta. That is because I need someone who has the tools to operate as well as the skill. There are only a handful of surgeons world wide that can properly excise this disease and Dr. Koh is one of them
Hope that helps
"There's an amazing Reproductive Endocrinologist named Dr.Dodds who is a surgeon in Grand Rapids, he is amazing and is skilled with the best bedside manner! Plus he's the best ranked endo dr in MI and top ranked in the country, he is the best!"
also
"I went to the endo center at u of m and was not impressed. They only focus on infertility, not treatment of endo and they did my laparoscopy and they let a resident do it without my knowledge and they messed up. But my pain specialist is at u of m and he is incredible! He is at the u of m back and pain clinic and his name is Dr. Chiravuri! He focuses on pelvic pain and is super understanding"
Also
This one guy is one of the best Endo surgeons and was mentioned by a 25-30 yr advocate for Endometriosis I would go with this one as he is talked about alot.
"What about Charles Koh in Milwaukee or Patrick Yeung in St Louis"
I know some of these are a little bit further than you want but I can tell you without a doubt you want the best of the best to operate on you with this disease.
I live in Canada and will be saving money to go to Atlanta. That is because I need someone who has the tools to operate as well as the skill. There are only a handful of surgeons world wide that can properly excise this disease and Dr. Koh is one of them
Hope that helps
From I can see there seems to be a couple in Chicago and one in Detroit but I know thousands of endosisters and I will throw it out there in social media to help you find one of the best
I was diagnosed with stage IV several years ago after an exploratory laparoscopy was performed. After a 6 month course of Lupron, I've been told that I have endometriomas that might need to be removed via surgery and that part of my ovaries would be removed in the process. I only want the best surgeon if this indeed has to be done. I live in Kalamazoo, Michigan. Can you help me find someone?
So that was the tweet I got back from the Centre For Endometriosis care. They told me to tell you to email them.
I did about a month ago. You register on their site, the top surgeon will review your case so you will have to fill out some paperwork and send over your surgery reports, pictures, tests etc and he will review it with you :)
They are really great. In Canada there are limited surgeons and they are fighting on my behalf to have the surgery done there.
I would go to them if you want to get your quality of life back and have less chance at regrowth and more surgeries. Dr. Sinervo and his team are just amazing
I did about a month ago. You register on their site, the top surgeon will review your case so you will have to fill out some paperwork and send over your surgery reports, pictures, tests etc and he will review it with you :)
They are really great. In Canada there are limited surgeons and they are fighting on my behalf to have the surgery done there.
I would go to them if you want to get your quality of life back and have less chance at regrowth and more surgeries. Dr. Sinervo and his team are just amazing
Okay this place is one of the best and this is what I was told
@CtrForEndoCare: We are not that far away; welcome to do free case review w/us anytime. Also maybe Advincula in Celebration.
@CtrForEndoCare: We are not that far away; welcome to do free case review w/us anytime. Also maybe Advincula in Celebration.
I am in the brandon Fl/ Tampa Fl area. Could you help me identify a good doctor?
Thanks!
Thanks!
I can help you out with this but not about the pcos as I don't know much about it.
Free fluid is usually and indicator of endometriosis.
If you have an endometrioma (blood filled) cyst it is an indicator of severe to moderate disease. Also bcp will help shrink cyst but if they are blood filled they will not go away they have to be surgically removed through a key hole surgery.
Having endometriosis doesn't mean you won't be able to conceive but you won't know until you try.
I had stage IV and conceived and so have many other women.
Best thing for you to do is locate the best endometriosis surgeon that excises (cuts out) that uses minimal or no laser.
If you tell me where you live I can help you out in finding the best of the best.
Te key to removal of Endo is getting all of it. Endo feeds off estrogen so the lesions have estrogen in them so if you don't get it all it will come back.
Free fluid is usually and indicator of endometriosis.
If you have an endometrioma (blood filled) cyst it is an indicator of severe to moderate disease. Also bcp will help shrink cyst but if they are blood filled they will not go away they have to be surgically removed through a key hole surgery.
Having endometriosis doesn't mean you won't be able to conceive but you won't know until you try.
I had stage IV and conceived and so have many other women.
Best thing for you to do is locate the best endometriosis surgeon that excises (cuts out) that uses minimal or no laser.
If you tell me where you live I can help you out in finding the best of the best.
Te key to removal of Endo is getting all of it. Endo feeds off estrogen so the lesions have estrogen in them so if you don't get it all it will come back.
Have an Answer?
You are reading content posted in the Endometriosis Community
STDs can't be transmitted by casual contact, like hugging or touching.
Syphilis is an STD that is transmitted by oral, genital and anal sex.
Normal vaginal discharge varies in color, smell, texture and amount.
Bumps in the genital area might be STDs, but are usually not serious.
Chlamydia, an STI, often has no symptoms, but must be treated.
From skin changes to weight loss to unusual bleeding, here are 15 cancer warning signs that women tend to ignore.
