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I was wondering if anyone can help? Edonmetriosis signs?
Hi,
I am struggling so much at the moment, I have had pains for years but the last few months have been terrible. I have been to the hospital twice where they had mentioned endo, but said they could not refer me for anything and it had to be my GP. The out of hours docs gave me antibiotics to see if they helped - they didn't, so I was given tramadol for my pain. Ended up back in hospital and rushed for a scan to show a thin womb lining and 3 cysts on my ovaries but they said they wont be causing the pain. I have severe pains in my lower abdomen and pelvis, shooting pains in my back and legs, fatigue and excessive bleeding. I ended up at the doctors to which said I need to be referred for a laparoscopy - I have been waiting 5 weeks for a letter to come through but no sign as of yet. I feel lost, I know endometriosis appears to run in my family, I'm just wondering if anyone can confirm the symptoms? And if anyone has been in the same position - will I get the camera straight away or do I have to have a few appointments first? It's ruining my work life and social life these past few months.
I am struggling so much at the moment, I have had pains for years but the last few months have been terrible. I have been to the hospital twice where they had mentioned endo, but said they could not refer me for anything and it had to be my GP. The out of hours docs gave me antibiotics to see if they helped - they didn't, so I was given tramadol for my pain. Ended up back in hospital and rushed for a scan to show a thin womb lining and 3 cysts on my ovaries but they said they wont be causing the pain. I have severe pains in my lower abdomen and pelvis, shooting pains in my back and legs, fatigue and excessive bleeding. I ended up at the doctors to which said I need to be referred for a laparoscopy - I have been waiting 5 weeks for a letter to come through but no sign as of yet. I feel lost, I know endometriosis appears to run in my family, I'm just wondering if anyone can confirm the symptoms? And if anyone has been in the same position - will I get the camera straight away or do I have to have a few appointments first? It's ruining my work life and social life these past few months.
I hope I can help out somewhat.
1) The multiple cysts sound like it could possibly be PCOS which goes hand in hand with endo. Do you know if the cysts were blood filled? (Endometrioma)
2) The process is quite long when dealing with Endo and I see that you have family that have it so you have an 8 fold chance of having it due to direct genetic genes. So that being said I would bypass all the unnecessary doctors and try to get a referral to an Endo specialist in your area. This way you are taken seriously from the beginning and this is important for mental health as well. I can help find you one just let me know where abouts you live so at least you are headed in the right direction.
3) Do not have surgery with a regular gyno please. Make sure it is an endo specialist I can't express this to you enough. You need your first surgery to be done by the best of the best. Endometriosis is a multi organ disease and regular gyno/obgyn's don't have the skill to properly remove the disease. You do not want someone who has been up until 4am in the morning delivering babies to be operating on you at 8am.. Trust me when I say this..This is a complex disease and you want to be in the right hands. Even if it takes you longer to get in to the specialists (which usually happens) know that you will be well taken care of...
1) The multiple cysts sound like it could possibly be PCOS which goes hand in hand with endo. Do you know if the cysts were blood filled? (Endometrioma)
2) The process is quite long when dealing with Endo and I see that you have family that have it so you have an 8 fold chance of having it due to direct genetic genes. So that being said I would bypass all the unnecessary doctors and try to get a referral to an Endo specialist in your area. This way you are taken seriously from the beginning and this is important for mental health as well. I can help find you one just let me know where abouts you live so at least you are headed in the right direction.
3) Do not have surgery with a regular gyno please. Make sure it is an endo specialist I can't express this to you enough. You need your first surgery to be done by the best of the best. Endometriosis is a multi organ disease and regular gyno/obgyn's don't have the skill to properly remove the disease. You do not want someone who has been up until 4am in the morning delivering babies to be operating on you at 8am.. Trust me when I say this..This is a complex disease and you want to be in the right hands. Even if it takes you longer to get in to the specialists (which usually happens) know that you will be well taken care of...
In my experience, they do the work that needs to be done while they are in there in one appointment. You may have adhesions. I had antibiotics for 3 weeks thinking it was a UTI but it was adhesions and endometriosis causing the pain. I quit sports and intercourse is painful. I use castor oil on a flannel fabric underneath my heating of on my belly to bring relief along with Advil with Tylenol. There is hope but when you are in that kind of pain, 5 weeks is a long time. I had my family doc call the gyn to explain the pain I was in to expedite the procedure. That was 9 days ago. I'm still in a lot of pain. Hoping for relief soon. Good luck
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