endo

[unicornkari]

FINALLY KNOW WHAT I HAVE ITS ENDOMETRIOSIS FOR SURE!! IM VERY EXCITED THAT I FINALLY KNOW AFTER LAPROSCOPIC SURGERY! I WAITED 15 LONG YEARS TO FIND OUT FOR SURE! IVE BEEN IN NON STOP PAIN FOR HALF MY LIFE. MY DOCTOR STARTED ME ON A LOW BIRTH CONTROL AND BURNT OUT THE ENDO. I STILL HAVE PAIN AS OF NOW..(ITS BEEN 6 WEEKS SINCE SURGERY) BUT IM HOPEFUL I CAN GET BETTER NOW THAT I REALLY KNOW WHATS WRONG AND THE FACT THAT THEY BURNT IT. I HOPE TO BEABLE TO HELP OTHERS GET BETTER FROM THIS DISEASE AND COPE WITH IT,IF THERE ARE ANY QUESTIONS PLEASE FEEL FREE TO ASK!!! BY THE WAY I WAS ABLE TO GET THE SURGERY FOR FREE! WITH ALOT OF PERSISTENT DOCS APPOINTMENTS AND SIGNING UP FOR THE RIGHT INSURANCE I WAS ABLE TO HAVE THE SURGERY, ABSOLUTELY  I THANK EVERYONE FOR THE THOUGHTS AND PRAYERS AND ALSO WITHOUT THIS SITE I MAY HAVE GAVE UP ALL TOGETHER....ILL NEVER BE RID OF THE DISEASE,BUT NOW I KNOW AND KNOWING IS HALF THE BATTLE!

[ticked]

I have only had one but it was 4-5hrs long because of how much there was and the damage that was done. Lupron is way too expensive, it cost me $1500 for one injection for 3 months with the add back therapy. I would rather be on my bcp that I have been on for 4yrs.

The funny thing is its possible that I might have Lymes disease as well and I am wondering what part of the pain is endo and what part is that.  

[unicornkari]

oh wow..im sorry u are still in so much pain ;( how many surgeries have u had? i just found out how much lupron is,and i cant afford it:( i guess ill stay on this b.c pill its called mono nessa half progesterone and half estrogen. thanks so much for getting back..hope ur surgery goes well! so far im still spotting its so irritating blahhh im glad i can talk to someone about it i dont feel so alone :)

[ticked]

yes the pain while urinating is the worst!!! I had it over all the ureters, bowels and bladder. The Lupron I guess helped but the pill i took continuously didn't have as many side effects and it worked just as good if not better.

I was taking Marvelon21.  

Right now back on the Lupron and back to the surgeon in 3 weeks. I really need something done.

[unicornkari]

oops actually its only been a little over 2 months since surgery..ps i also have it on my urethra hints the pain when i urinate

[unicornkari]

omy GOODNESS! thats horrible, im sorry it was so bad! sorry im so late getting back to you. mine isnt as spread out as yours,but my doc said it was the most painful of the kind. so far i have MORE pain then i did before surgery :( im thinking i need to start the Lupron even though i dont want to,b/c i want to have children sometime and im 31, and married and have yet to have any kids. :( i cant have sex with my hubby still! its been 3 months and im taking B.c for the pain but it isnt working, we tried 2 times and its worse than before..so hopefully the lupron will work for me (havent tried it yet) please pray! thanks for writing! :) can you tell me how long lupron takes to kick in? and if there are side effects?

[thebrat333]

Hi there

Yes it is horrible dealing with the constant pain I feel disabled sometimes.
I too am still waiting for  my dates for surgery am a bit scared though as not had surgery down there before!  

Are you going to have the same surgeon as last time?  

Not sure which one would be better for you to have as they are both horrible so I suppose I can only hope you get it sorted soon whichever one it is.

God Blessxx