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FINALLY KNOW WHAT I HAVE ITS ENDOMETRIOSIS FOR SURE!! IM VERY EXCITED THAT I FINALLY KNOW AFTER LAPROSCOPIC SURGERY! I WAITED 15 LONG YEARS TO FIND OUT FOR SURE! IVE BEEN IN NON STOP PAIN FOR HALF MY LIFE. MY DOCTOR STARTED ME ON A LOW BIRTH CONTROL AND BURNT OUT THE ENDO. I STILL HAVE PAIN AS OF NOW..(ITS BEEN 6 WEEKS SINCE SURGERY) BUT IM HOPEFUL I CAN GET BETTER NOW THAT I REALLY KNOW WHATS WRONG AND THE FACT THAT THEY BURNT IT. I HOPE TO BEABLE TO HELP OTHERS GET BETTER FROM THIS DISEASE AND COPE WITH IT,IF THERE ARE ANY QUESTIONS PLEASE FEEL FREE TO ASK!!! BY THE WAY I WAS ABLE TO GET THE SURGERY FOR FREE! WITH ALOT OF PERSISTENT DOCS APPOINTMENTS AND SIGNING UP FOR THE RIGHT INSURANCE I WAS ABLE TO HAVE THE SURGERY, ABSOLUTELY I THANK EVERYONE FOR THE THOUGHTS AND PRAYERS AND ALSO WITHOUT THIS SITE I MAY HAVE GAVE UP ALL TOGETHER....ILL NEVER BE RID OF THE DISEASE,BUT NOW I KNOW AND KNOWING IS HALF THE BATTLE!
Ya I cringe at the thought LOL.. I think of sex as painful torture. That is why I would rather be alone than to be with someone that I know I cant please them the way they need to be pleased. Its a hard situation to be in.
as for the next surgery I dont have one yet. Because there was fluid behind the cul de sac my surgeon put me on Lupron again to see if it will go away and to determine if the issue is PID related or Endo. Either way he is doing one because I cant deal with anymore of this.
as for the next surgery I dont have one yet. Because there was fluid behind the cul de sac my surgeon put me on Lupron again to see if it will go away and to determine if the issue is PID related or Endo. Either way he is doing one because I cant deal with anymore of this.
awww lol
I can't have sex either and hubby is going nuts and its only been a few months.!!!
When is your next surgery do you have a date yet??
I can't have sex either and hubby is going nuts and its only been a few months.!!!
When is your next surgery do you have a date yet??
Yes!!! It has been hell along with all of the other health issues I have had over the last 17yrs.
If you ovary is wrapped around your uterus that is a good sign that you have severe endo. That is just my opinion though.
My op was over 4yrs and it was horrendous. I couldn't urinate after the surgery and had to get a catheter in and just love those, NOT!!! LOL
I had previous bowel surgery when I was 7 so after 27yrs the adhesions were bad just from that, not to mention the mess that was covered all over my insides.
I am thankful to have had the best knowledgeable surgeon doing this as most of them will not remove endo off the bowel, bladder or ureters.
Here I am again thanks to me getting PID I will have to undergo another surgery for the damage that has caused. Not sure if its endo or PID mess so I am on Lupron now because I have fluid behind the cul de sac.
I cant have sex it hurts way too much, I have vaginal and anal fissure since last year, and I am really sick and tired of all of this LOL..
I try to stay happy so that I dont lose my mind
If you ovary is wrapped around your uterus that is a good sign that you have severe endo. That is just my opinion though.
My op was over 4yrs and it was horrendous. I couldn't urinate after the surgery and had to get a catheter in and just love those, NOT!!! LOL
I had previous bowel surgery when I was 7 so after 27yrs the adhesions were bad just from that, not to mention the mess that was covered all over my insides.
I am thankful to have had the best knowledgeable surgeon doing this as most of them will not remove endo off the bowel, bladder or ureters.
Here I am again thanks to me getting PID I will have to undergo another surgery for the damage that has caused. Not sure if its endo or PID mess so I am on Lupron now because I have fluid behind the cul de sac.
I cant have sex it hurts way too much, I have vaginal and anal fissure since last year, and I am really sick and tired of all of this LOL..
I try to stay happy so that I dont lose my mind
Hi there!!!
Blimey you have been through the mill . The scariest bit must have been thinking you had cancer !! Glad you haven't though lol
I had a ca125 result second time of asking as the hospital refused to do it the first time around and only did the other blood work requested!!! I only found out by accident they hadn't done it and was soooooo annoyed as was thinking was ok for weeks !! It came back as 16.5 though in the end which was a huge relief.
I had my third ultrasound today (internal ) and this time no cysts but she told me my left ovary is wrapped around behind my uterus (noone mentioned that before!!!!)
Now just waiting for a date for my double op (laparoscopy and cystoscopy ) with two diff consultants and hope they sort me out lol
How long did your op take ?? sounds horrendous
Blimey you have been through the mill . The scariest bit must have been thinking you had cancer !! Glad you haven't though lol
I had a ca125 result second time of asking as the hospital refused to do it the first time around and only did the other blood work requested!!! I only found out by accident they hadn't done it and was soooooo annoyed as was thinking was ok for weeks !! It came back as 16.5 though in the end which was a huge relief.
I had my third ultrasound today (internal ) and this time no cysts but she told me my left ovary is wrapped around behind my uterus (noone mentioned that before!!!!)
Now just waiting for a date for my double op (laparoscopy and cystoscopy ) with two diff consultants and hope they sort me out lol
How long did your op take ?? sounds horrendous
My symptoms before being diagnosed was severe rectal pain and constipation which ended up being the rectovaginal cyst. It hurt to have sex, have a bowel movement and it felt like someone was stabbing my rectum at random times. It hurt more when I ovulated and a day before my period. I couldnt have a bowel movement until my period was over and that is when the pain would finally subside.
I was nauseated for 2 yrs prior every single day with severe migraines that I would have to go to the hospital to be treated. a year before my surgery I had a acid reflux issue and was on pantaloc but came off it after my surgery and the symptoms completely went away.
I had cramping all the time, I have had urination issues since the birth of my child and they did find Endo on my bladder and bowels so I think that is why I had the bladder issue also its possible that I have IC which there is no real test to confirm.
My first ultrasound showed a 10cm cyst behind my uterus.
I was sent to another doctor as they suspected I had cancer. He did a CT scan as well as 2 CA-125 blood test. The first blood test was 37 when I was ovulating and the second was 78 on my period. 35 being the norm so it showed I had inflammation not cancer, as per my oncologist.
The CT scan showed that the cyst had shrunk to 5cm and that it didnt look like cancer.
So when they finally operated I had endo everywhere and I mean everywhere. The cyst that they said was 5cm wasnt really a cyst at all, what they were seeing was my uterus with all my insides wrapped around it. That is why they could never see my ovaries on the Ultrasounds. They kept saying they couldnt find them then they said they could and they were where they were supposed to (which makes me wonder if these people know anything)
I didnt have any cysts rupture on me.
I was nauseated for 2 yrs prior every single day with severe migraines that I would have to go to the hospital to be treated. a year before my surgery I had a acid reflux issue and was on pantaloc but came off it after my surgery and the symptoms completely went away.
I had cramping all the time, I have had urination issues since the birth of my child and they did find Endo on my bladder and bowels so I think that is why I had the bladder issue also its possible that I have IC which there is no real test to confirm.
My first ultrasound showed a 10cm cyst behind my uterus.
I was sent to another doctor as they suspected I had cancer. He did a CT scan as well as 2 CA-125 blood test. The first blood test was 37 when I was ovulating and the second was 78 on my period. 35 being the norm so it showed I had inflammation not cancer, as per my oncologist.
The CT scan showed that the cyst had shrunk to 5cm and that it didnt look like cancer.
So when they finally operated I had endo everywhere and I mean everywhere. The cyst that they said was 5cm wasnt really a cyst at all, what they were seeing was my uterus with all my insides wrapped around it. That is why they could never see my ovaries on the Ultrasounds. They kept saying they couldnt find them then they said they could and they were where they were supposed to (which makes me wonder if these people know anything)
I didnt have any cysts rupture on me.
Hi there
I am almost certain that I have endometriosis but am still waiting for my laparoscopy to confirm it .
The gyno that I saw wasn't the top consultant (would have to wait till january just to even speak to him ) and he wasn't very nice and said to me he didn't think I had it because I had three children with no problems concieving.. I tried to explain to him that I was on the combined oral contraceptive pill for nine years from the age of 16 before trying to concieve (that would have controlled it ) but he wasn't really listening .
I had my last child 12 years ago and since then I have had proper periods aaaaargh !! they were so bad I had hydro thermal ablation 4 years ago.
The pain killers I am on at the moment are quite strong but they only take the edge off and it is always worse after exercising and around ovulation and my period.
The main pain is on the left side ovary area and in my lower back and can't walk for a week for the pain after an internal ultrasound (having my third one on monday aaargh)
What were your symptoms before you were diagnosed?? and did you have any cysts or ruptured cysts??
I am almost certain that I have endometriosis but am still waiting for my laparoscopy to confirm it .
The gyno that I saw wasn't the top consultant (would have to wait till january just to even speak to him ) and he wasn't very nice and said to me he didn't think I had it because I had three children with no problems concieving.. I tried to explain to him that I was on the combined oral contraceptive pill for nine years from the age of 16 before trying to concieve (that would have controlled it ) but he wasn't really listening .
I had my last child 12 years ago and since then I have had proper periods aaaaargh !! they were so bad I had hydro thermal ablation 4 years ago.
The pain killers I am on at the moment are quite strong but they only take the edge off and it is always worse after exercising and around ovulation and my period.
The main pain is on the left side ovary area and in my lower back and can't walk for a week for the pain after an internal ultrasound (having my third one on monday aaargh)
What were your symptoms before you were diagnosed?? and did you have any cysts or ruptured cysts??
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