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What to tell my dr.?

I have had two c- secs and tubal(2009, 2013). I have had blood tests done, ultrasound came up with nothing and they couldn't see left ovaries. Dr. In previous visit had told me to schedual emb after I had my ultrasound. I went in on friday, and she told me it's endomitriosis. She gave me a brief description, and said to go on birth control. I have my tube tied in 2013, because I can't handle the hormones in birth control and am done having kids. I was like OK so we are scheduling surgery then and cutting it out?
She said no, no guarantee to even find them all. She started to walk out. I was shocked and stunned I'm like wait wait what am I suppose to do now? She said just take ibprofin. I am now The home after days of googling. I don't know what to do next. I want a second opinion and a former of treatment. I am so sick it's affecting everything. I had severe nausea,  migrains, bleeding, cramping, aches and heat/ chills. What the heck to I tell my dr. To take care of me???
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136956 tn?1688675680
I just want to make this quite clear to everyone so there isn't any misunderstandings. There is NO CURE for Endometriosis. Period!

Western medicine, Endo diets,Excision surgery, Hormone replacement, Hysterectomy, will not cure Endometriosis. Please do not believe what the person above is saying. The message up above that "The slowdown and stagnation of blood flow in the pelvis, and the heat-damp environment" is false.

Endometriois caused by abnormal cells that grow outside the uterus.

The only way to get some sort of pain relief is through Excision surgery in which the disease is cut out from the root. Not many surgeons know how to do this so you want to find the best possible Endo surgeon in your area that can excise.


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Avatar universal
I had severe endometriosis finally confirmed after I diagnosed it clear back in 2004...I had a complete hysterectomy with my ovaries removed and my endometriosis continued to destroy my pelvis...now 6 surgeries later I am doing better in regards to pain...but I still have pain every day...I would strongly recommend you see an endometriosis specialist that does excision surgery (cuts the endo out) in order to not have pain (or hopefully not have pain or at least less pain) the disease has to be cut out as that is the only potential cure for this monster disease...it is like if you have a grain of sand in your eye it causes a lot of inflammation, irritation and pain...endometriosis is the same...one tiny missed bit of the disease can continue to cause pain and since it can be the width of a strand of hair it is important to see a specialist if you want any chance at being well! It frustrates me to see dr. still just saying take the organs to cure the disease because this is inaccurate information. The only way to get rid of endometriosis is to cut out the disease and it's roots...if they do ablation (burn it) all this does is kill the top layer of the disease, but unfortunately the disease has roots like plantars warts so it goes very deep and must be cut out like cancer - beyond the disease in order to ensure all the disease has been removed. After I had all my female organs removed (castration) it caused me many other issues which an endometriosis specialist would not have done...and this has changed my life in a huge way...my life is good don't get me wrong and I am not complaining (too much!;)) but it has certainly been hard because the Dr.'s I had in the beginning of my endo journey did not understand the disease...Please feel free to pm me if you want to or continue conversation here...good luck in the endo journey it is so challenging because it's one of those "unseen diseases"! {{{hugs}}
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