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594907 tn?1227309164

Aura vs. Seizure

I am curious if anyone can answer this for me.  Nocturnal Seizures and now activity in the daytime.  Starts with blind spot, then Kaleidescope swirling black and white starts at the bottom of my eye (sometimes both) works it way around full circle, I feel like I'll be blind in a matter of minutes, sometimes seconds. Feels like everything is closing in around me, my hearing is getting fuzzy.  Used to last around 20-30 minutes, now only around 15-20. What bothers me is, these episodes are now followed by confusion. My mouth cannot seem to connect with my brain to speak.  I don't think a migraine leaves you confused!  Also my lips are getting numb.  Any help is appreciated.  Thanks  
Debbie
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697386 tn?1241026555
"7 year old daughter...she gets extremely confused and she mumbles...i cannot understand what she is saying most of the time...after about 5 minutes her speech is okay and she can communicate but mostly it is jibberish and she finally just stops talking and just lays there because she cannot communicate with me."

I've had seizures for all my life, due to brain injury as infant, I had Peti-Mal as child. I can really feel for your daughter, I was speech developed late,  I now have grand-mal sz and I still have trouble talking.
Being as communication is learned as a child, makes whole thing just "off". and am dubbed as "One who repeat speaks backwards"  meaning, I stutter whole words or phrazes, and jumble letters with in words and sentences, as well as grammar.lol..

not so funny as a child though, feelings of isolation and not belonging, were a big problem for me as child, It was always easier to just not talk.
If she's on Keppra and still experiencing this, get back to doc or different neurologyst doc and different meds possibly,
lips being numb can indicate low oxygen in brain.

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Avatar universal
This happens to my 7 year old daughter...she gets extremely confused and she mumbles...i cannot understand what she is saying most of the time...after about 5 minutes her speech is okay and she can communicate but mostly it is jibberish and she finally just stops talking and just lays there because she cannot communicate with me.  After all of that disappears, she goes straight to sleep.  She has complained about her lips being numb...not sure why this happens nd Dr. cannot explain either...not sure any of this helps...
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594907 tn?1227309164
Hi Barb,

I usually only had nocturnal seizures for a little over 8 year, then I start having all kinds of auras during the day (variant)
Some of the things I experienced at night were now happening in the daytime too.  Smelling things that weren't there, feeling like the earth was bouncing up and down beneath my feet, feeling like I'm here but I'm not, dizzy nuaeated, ready to pass out,
Migraines, I could go on forever trust me with my episodes.  I was initially trying to get an answer as to weather the auras were just the warning sings before the seizure,  I found on epilepsy.com that auras are consider simple partial siezures.  Meds I take are topamax, klonopin, reglan, maxalt. Tramadol (ultram) and effexor.  The effexor is used for vasoconstriction, because when I get my episodes which are still quite frequent (like daily) my heart gets involed in the process and doesn't know what to do.  My heart rate will go up to 140 150 and right down to 30 bpm.  Sorry so long.  Please feel free to write back.  For some reason your e-mail did not properly show.  Debbie
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Avatar universal
Hello,

As a person with epilepsy I am always interested in how others handle the difficulty associated with it.  Very confusing isn't it.  I just joined the  forum and so am unfamiliar with your question but I'd like to try to answer and support you in your quest.  I have had surgery for seizure control after having seizures for 21 years. I still take medication but they work now.  Keep in touch.  In case you'd like to communicate via email I'm ***@****
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594907 tn?1227309164
Well per my own research, per epilepsy.com, an aura is a simple partial seizure.  I can't believe how long my question has been posted on this site without a response, Over two months.  I do enjoy reading this forum though.  I find it interesting and can relate to some of the other symptoms that others go through.  Happy Thanksgiving Everyone!!
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