Solve this puzzle

[katepne]

Im a 37 yr old woman that developed staring spells that, most times, roll into tonic/clonic seizures. I am in and out of conciousness during it and generally it lasts about 1-3min. Afterwards I am lethargic, sometimes I have trouble speaking and my thoughts are muddled.This all reached its peak around a year ago and I had to go on disability. I also developed migraines around the same time. MRI showed a pineal cyst, bloodworkup only showed elevated iron, and sodium levels. I had several EEG tests(1hr, 24hr, 3dayVEEG and admission to an EMU at University of Penn for what I thought was supposed to be an extended stay for evaluation but only lasted 1 day), they showed temporal slowing. So I was told I had psychogenic seizures, and to get counseling. I had been on dilantin (which decreased my seizures), during the last EEG but they took me off when they changed the diagnosis. Since I've been off, I've had seizures everyday. I have dizziness, imbalance, weakness in my exremities, poor concentration, and memory which has been consistant prior to and throughout these trying times. I am at my wits end! Not saying that I haven't listened to the doctors I have been seeing and taken their advice to see a therapist. I just wanted to know what you all thought.
Thanks!!

[Keppra]

I have been going through seizures since I was 12yrs. and now I'm 54. At first they were bad seizures and my neur. but me on dilantin and other meds.  and  then as I was growing up they would be daily and then they experment with my med levels and they got my seizures down to a couple a week.  When I was about 34 I moved and had to go to another neur. and he took all kinds of test and a MRI.  Then the next thing he said to me is we have to get you off of dilantin he said it was eating up part of my brain. (thats called cerebllar atrophy)  So he took me off of dilantin and put me of KEPPRA, he had to experment with the levels but the level I'm on now is 500mg twice a day.  And I'm also on diamox and tegertol..........Good Luck just don't go back on dilantin.

[Mrs_cantu0929]

This sounds similar to what was going on with me. It started when I was 18 right after I had my first baby. I went years with no medication and at first it wasn't bad. 2 years later I had my 2nd baby and after delivery it got worse. I wasn't diagnosed with epilepsy yet so I was not on any medicine. By this time I was having full blown out seizures and seen a different doc that put me on dilantin and sent me to a neurologist. After many test I was diagnosed with epilepsy. I take lamictal 200mg twice a day and I have been seizure free for 4 years. When I was at my worst I was having about 5+ seizures a day and couldn't even hold my baby without someone there with me. It was really bad. Maybe you need a dif medication?

[abstrakt]

did they put you on another drug?

[katepne]

Well I thank you kindly for the response anyways!  :-)

[NcokeO]

I just dont know what to say i have read the post a few times now and hve just been stumped. sry

[katepne]

So I guess there are no thoughts on this hunh? LOL