too many meds

[siplin]

My son is 19 years old and has Lennox-Gastaut Syndrome, he's on Keppra XR, Clonazepam, and Banzel. There's a chance lamital will be added. Is this too many meds. I have heard 2 or 3 meds at one time, no more. What affect does the drugs have on LGS?  

[Trice27]

Hi my Daughter has Epilepsy. She has been having Seizures since Birth. We didn't know until she was 3 years old. We assumed it was GERDs but the meds she was on did not help her. Months went by and years went by and no diagnosis.

Anyway, before I get mad again.
She has taken Phenobarbital- had her as a Zombie
Keppra- stopped her seizure right then and there. Thank God for Keppra. But then she started having more auras with out the seizures. So the Doc, stopped the Keppra added Trileptal - stopped that after a week because of no change.
Started Banzel. Auras got worse but wanted to keep her on Banzel but to add Topamax and then stop Topamax and start Vimpat.
None of that mess has helped my Baby.
Now she is vomiting daily.  ( for 7 days now.)
She is on Banzel and Vimpat.
This meds is not good.
Another Doc wants her to try Tegretol.
What do I do about these Doctors and my Baby health??????

[MelChr]

My granddaughter has Lennox Gastatut and we are going o try the "Ketogenic" diet next month.  It can reduce seizures or even stop them completely in 50% of children. If it means even reducing her doses it would be very worth it. She takes Keppra and Topomax right now and the seizures have reduced by half maybe, so still about 50 absence seizures a day.  From what I'm reading and what our neuro dr is telling us,  if the meds don't stop the seizures after 2-3 different ones, they probably will not stop the seizures.  We hate the meds, make her floppy and agitated, she is not herself at all.

Vickilyn, if your son is showing no developmental delays, and no regression in development, what are they basing the diagnosis on. Has he had an EEG yet.  A slow spike and complex seizure is one of the LGS trademarks, although it can still be other syndromes.  What types of seizure(s) does he have, how many a day?  Does he drop his head? I would advise you to see a 2nd neuro to get another opinion.

[vickilynnpurdy]

I would love to hear from you ....I am interested in the different symptoms of Lennox-gastaut, as they are trying to determine if this is what our 21 month old has......
I have read and read about it, but he has no obvious developmental delays at all, in fact he says hundreds of words, none connecting, but talks up a storm, knows his shapes and has great eye hand coordination......eeg shows little....MRI shows bilateral horn prominence with some decreased white matter.
He is on phenobarbital and valproic acid...

[dollyn]

I know what you mean when you say is this to manny drugs,My ten year old son may have Lennox-Gastaut Syndrome  and Kappra was added to his meds and he was already on 3 meds.

Look up Lennox-Gastaut Syndrome and you will find that they put then on all kinds of meds and that they don't always work.And you can look up the side effects to the meds that he is on.

somewhere I found a site where poeple has posted pitures and stores about there children and what and where after being on a lot of meds.

It is very scary.

good luck and god bless your family.