What if your neurologist and neurooptamologist are not agreeing. One says Fibromyalgia and Silent Migraine Syndrome and the other says NMO (Neuromylitis Optica or Device's Disease) and Ideas? Thank you
Hi mariarap, I do hope you have checked back in on your posts! What Dr. Hagan said is very true, you need to get help ASAP.
From what you have told us, I am thinking that you have IIH/PTC.(Idopathic Intracraial Hypertention) I am not a dr but I have IIH and your symptoms plus your " opening pressure" that is, the results of the lumbar pucture suggest you have IIH.
What has your dr said? Are you under the care of a Neurologist yet?
None, of what you are experiecing is normal!
If I can help you in any way, please pm me. I know a lot about this illness. Goood luck! Cath278.
None of that is normal and swollen optics nerves are a very serious situation. You need to remain under close care of your neurologists and neuroophthalmologists. The most common name for swollen optic nerves is "papilledema". Use the archives, search feature and a internet search engine to learn more.
JCH MD