Lyrica

[LLWB]

My dr started me on Lyrica 5 weeks ago, and it is the first medication that has helped me. I can swim laps in pool, and am even walking a mile most days. I couldn't do any of this before the medication. I could barely work, or clean house. I did hire a house cleaner  every other week, which helps a lot. I still hurt, but at least it is bearable now. Certainly worth a try  if your dr will perscribe it.

[Anabele]

Hi LLWB, I am new to this board, just got on today and found this forum and really am thankful.  As for your question on the Lyrica, it does make you sleepy and sometimes dizzy too.  I would recommend you ask your dr. if you can just take the one 75mg at night and skip the day one since you have just started.  I would not be able to stay awake if I were taking it during the day, especially if in the morning.  I wrote to someone else about relief for FMS under another topic on this forum and I will tell you what I told them has helped me with my FMS.  I have neuropathy also and my feet really hurt very badly!  The doctos say it is ALL the FMS, with the exception of the neuropathy in the feet too, and put me on the Lyrica.  But, I take an all natural supplement along with it called Vita Natural FMS formula and I started it ten years ago when I was first diagnosed.  I was in bed for a year until my husband at the time found the website and purchased it for me.  I only take half what they tell me, only two a day and it pretty much took away alot of my symptoms, especially being tired and feeling like a mack truck had run over me when I would fist awaken and try to get out of the bed!  It also got me up and kept me up and out of bed.  It is formulated by two MD's and you can look at it at VitaNatural.com.  Between that and the Lyrica I feel I've had great help in my sypmptoms being relieved. I was on major pain meds but since taking the Lyrica too along with my FMS formula it's pretty much under control.  That's not to say I don't have the need to take a narcotic sometimes but doctors don't like treating FMS w/narcotics so I limit them alot.  I do not want to get back where I was, being on really strong pain meds. Side effects started being worse than the FMS!  I think the only time I really have lots of achey uncomfortablness and pain is when the barometric pressure starts dropping, that's the worst for me personally and it wakes me from a dead sleep it's so intense.  Hope this helps in someway.  Take care, gentle hugs

[fibrochick]

I have fibro and cfs, and I really relate to your comment. I too have compared my periods of remission to the movie "Awakenings"! And it IS so devastating to have to return to the pain and the exhaustion, especially after being your old self for a while. I feel for you, and I wish there was something I could do for both of us! I had to give up custody of my kids because of this condition, and I am on disability. I want to encourage you to continue trying new things as they come along. I want to encourage you to not be hard on yourself. I know what it is like to be at the bottom, the depression and hopelessness. The pain can make you think thoughts that you would otherwise not think. I will say a prayer for you. Be strong.

[uk2]

Hi

i miss work i so want to go back but i cant walk far at all or sit for long before i need a rest and i never know when my flare is coming i barley cope with my three young children and running the home i used to work 40 hours a week plus run the home its such a change for me.

I just cant work out what is wrong with me, i have my appointment now for the LP and EMG at London Hospital so maybe ill get some answers then.

Sleep is ment to be a key for fibro so i have read so maybe when you change your job your see a improvement in your health.

Take Care

[icrochetafghans]

Yes, I got my diagnosis of fibromyalgia in January. The Lyrica is working great for me. It doesn't do anything for the flares, so I have Tylenol #3 for that. It takes the edge off so I can sleep. I also have sleeping pills if I need them.

I work nights, so I can't do the one thing all the doctors recommend for FM patients. Set a regular schedule. Not in the cards for me. Sometimes I am up for over 24 hours at a time. Unfortunately, working nights is the only option for me right now.

[uk2]

I did reply but my reply must of gone to cybar space lol

Im seeing a neuro have been since may this year. Today i have been trying to get back to see a rheumotologist which i saw two years ago for pain in my knees and hands without having to be refered form my GP but its it hard going just getting hold of her. Thats the NHS for you.

Are you DX yet?

lyrica is a wonder drug but it still fails in the flares i dont think much works then.

God Bless

[icrochetafghans]

Oops, sorry, the last post was for you. I'm still learning this site