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Avatar universal

Lyrica

My dr started me on Lyrica 5 weeks ago, and it is the first medication that has helped me. I can swim laps in pool, and am even walking a mile most days. I couldn't do any of this before the medication. I could barely work, or clean house. I did hire a house cleaner  every other week, which helps a lot. I still hurt, but at least it is bearable now. Certainly worth a try  if your dr will perscribe it.
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Avatar universal
I've had fibromyalgia/CFS for 22 years. The first 8 I was in constant pain and took virtually nothing. To make a long story short I got married 4 years ago and my wife knew I was taking trazadone, clonezepam and Zoloft.

Now I'm been given an ultimatum: get off the drugs or we're getting divorced. My quality of life has been pretty good. But the side affects of Zoloft and Trazedone hurt me sexually. The Clonezepam is the biggest issue and I know I can wean myself off this. However, it is quite shocking to have someone say get off all medication or we're getting divorced.

I'm seeing a Dr. tomorrow to discuss what is in my best interests. If I get off all medication and revert to being in constant pain, etc. then it's not worth it. It's all very sad to me. As is always the case a person who is in perfect health can't see that this is all very real.

Why can't I find someone who can just accept me for who I am?????
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Avatar universal
There seems to be conflicting  views on this drug. How long as it been out?? I thought it was jsut recently approved by the FDA. I just joined her yeterday and maybe I am looking in the wqrong place but I don't see any replies to my commants.
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Avatar universal
I read your comments about lyrica and I am glad I did. I have an appointment with my doctor in a little while and in addition to the fibor and CFS symptoms I  have allergies and asthma, just to mention a couple. It sounds like maybe your doctor gave you too high of a dose but anyway I think I will start checking in on this forum when I feel like it and see what is helping or hurting someone with the use of lyrica. I am a person that has a very high sensitivity to medicataion and a lot of allergies related to pain medicine, there is almost none that I can take. I take 600mg. of neurontin at bedtime and have taken it during the day but couldn't tell any diference in the pain and the brain fog was a lost more. I will wait before I say anything to my doctor.
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Avatar universal
Thanks for sharing.  It's that kind of experience that's hard to find out from doctors and impossible from the drug company, along with the good experiences that's so useful to know about.  Sounds like there's a rebound factor that's not advertised for it yet, and they haven't narrowed down what subgroup is at risk for it.  Congrats on getting off it!
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Avatar universal
  I have never posted on this site but as I was reading about all of you taking Lyrica, I had to share my story of Lyrica with you.  I have had fibro for 8 years and about two years ago was put on Lyrica.  My Dr. started me on small doses and gave the counsel that this drug is great you can't overdose on it.  My symptoms were so severe that I was eventually taking 1200 mg. a day prescribed by my Dr.  Within 6 months I had gained 31 pounds and was most days like a walking zombie.  I tried 3X to wean off it and the W/D was so bad my husband told me later he thought I was going to die.  Finally the day after Christmas last year, I was looking at our family pics and truly did not know the woman I was looking at.  I decided right then to dump them down the toilet and be done with them.  It was HELL to say the very least.  With it being a nerve drug it felt like every nerve in my body was trying to crawl out of me.  It is truly only by the Grace of God and the help of my family that I survived it.  It was 3 months before I had no symptoms at all.  This drug might seem like a Godsend and I know it did to me but please, please be careful and be informed.  I would love to talk to anyone that needs to about this.  I know the pain of Fibro is so incredibly hard but I did find something that at least for me was worse and that was this drug.  
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Avatar universal
I saw it start to take effect in a week. Sorry I missed replyiiing. Welcome to the forum. Let us know how Lyrica works for you, hope you're feeling better. Sometimes work and home is all I can handle too. Try to plan on doing stuff on weekends, then no energy and don't do anything. I went to our Fair on Sunday, and on Monday, didn't even get dressed. You are not alone.
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