Aa
more severe pain
hi,, i would just like to know,,is anyone els suffering alot more pain than usual with this severe weather.and does anyone tend to get like,,nerve pains, all over ther body. im finding it realy hard to cope these days,
I didn't have "spams" I had "spasms" lol. Just wanted to clarify that. Also wanted to let you know that night sweats are common in Lyme disease as well.
If you have not yet seen the movie Under Our Skin, you need to see it. Both fibromyalgia and chronic fatigue can be caused by Lyme disease. Lyme disease is caused by a bacteria, Borrelia Burgdorferi and is transmitted by a tick. There is also controversy over whether it can be sexually transmitted. Before I was diagnosed my muscles were hurting me so badly. I would cross my legs and feel pain from one knee pressing on the muscle of the other leg. I couldn't sit cross-legged. I felt bruised under my skin even though there were no bruises.
I went snorkeling which I had done 5 years earlier and had spams so bad in my calf muscles that I thought I had DVT. It wasn't DVT. It was Lyme disease. It was getting worse as I went undiagnosed and I feel sure I would not be walking at this point if I had not been properly diagnosed. Lyme disease affects people differently because it can invade any organ, including the central nervous system and brain.
Since starting treatment for Lyme disease which is long-term antibiotics in my case, my muscle cramping has improved 75%. I don't hurt to the touch as much as I used to. I am not done with treatment as it may take up to two years, but if successful this can be cured, unlike fibromyalgia which you have to live with for the rest of your life until they figure out exactly what is causing it.
One way you might be able to tell if you may actually have Lyme disease that is causing your fibro or CFS is that when you first take antibiotics, specifically the penicillins, you will get a worsening of your symptoms. The joint pains and muscle pains will get worse. You may get brain fog, ringing in your ears, depression, etc. This is normal in the treatment and it is medically documented and occurs in the treatment of Lyme, Syphillis and parasite infections.
It's called a jarisch-herxheimer reaction. Next time you are on antibiotics pay attention. If your symptoms get worse, you need to be tested for Lyme disease. ILADS.org can provide you with information on symptoms and treatment for Lyme disease. I never knew what it meant when I heard they made fibromyalgia blankets. I always thought that was the strangest thing and didn't understand the concept. I do now. I still don't know why they work but I can tell you that when my muscles were so bad, there was a quilt an in-law made for me that helped soothe those muscles, not entirely, but it definitely helped. Why that works, I do not know, but it does. Sorry to be so long, but there has been no cause yet found for fibromyalgia so it is not impossible to think that it may be an undiagnosed bacterial infection that is causing your fibro. Know that I am not saying that fibro exists. I absolutely believe fibromyalgia is real. What I am saying is that the fibromyalgia is triggered by something and in some cases that may be Lyme disease.
I went snorkeling which I had done 5 years earlier and had spams so bad in my calf muscles that I thought I had DVT. It wasn't DVT. It was Lyme disease. It was getting worse as I went undiagnosed and I feel sure I would not be walking at this point if I had not been properly diagnosed. Lyme disease affects people differently because it can invade any organ, including the central nervous system and brain.
Since starting treatment for Lyme disease which is long-term antibiotics in my case, my muscle cramping has improved 75%. I don't hurt to the touch as much as I used to. I am not done with treatment as it may take up to two years, but if successful this can be cured, unlike fibromyalgia which you have to live with for the rest of your life until they figure out exactly what is causing it.
One way you might be able to tell if you may actually have Lyme disease that is causing your fibro or CFS is that when you first take antibiotics, specifically the penicillins, you will get a worsening of your symptoms. The joint pains and muscle pains will get worse. You may get brain fog, ringing in your ears, depression, etc. This is normal in the treatment and it is medically documented and occurs in the treatment of Lyme, Syphillis and parasite infections.
It's called a jarisch-herxheimer reaction. Next time you are on antibiotics pay attention. If your symptoms get worse, you need to be tested for Lyme disease. ILADS.org can provide you with information on symptoms and treatment for Lyme disease. I never knew what it meant when I heard they made fibromyalgia blankets. I always thought that was the strangest thing and didn't understand the concept. I do now. I still don't know why they work but I can tell you that when my muscles were so bad, there was a quilt an in-law made for me that helped soothe those muscles, not entirely, but it definitely helped. Why that works, I do not know, but it does. Sorry to be so long, but there has been no cause yet found for fibromyalgia so it is not impossible to think that it may be an undiagnosed bacterial infection that is causing your fibro. Know that I am not saying that fibro exists. I absolutely believe fibromyalgia is real. What I am saying is that the fibromyalgia is triggered by something and in some cases that may be Lyme disease.
I definately notice an increase in pain during the winter. I also get bad when the weather changes or the humidity rises. I wish I could convince my boyfriend to move to the dessert. :(
hi all yes i find this cold weather makes me worse with the pain i have had to use a walking stick ( i hate it ) but needs must i aslo find i lose consontration and memory loss i find myself in a shop a carnt think what i went in for i must look really gormless s..
Just read your post, i dont really have a choking feeling, but i cant have anything around my neck at all or it make me feel sick. But all your other symptoms i can relate to. I was diagnosed with fibro a few years ago, and one thing im concerned about are my night sweats, they are pretty bad. i wake up drenchd in sweat. At night im cold but having these night sweats! i hate it! My legs ache alot and burn. I can feel the heat coming off of them alot. And just this last month ive noticed ive been getting dizzy. ugh just one thing after another! I have other medical problems, too long to list :P back problems,hip,one leg is longer are the more seriousones.but i can def relate to your issues. It seems there would be some sort of medication to help night sweats...they come and go but they are a problem. Def not my biggest problem but very annoying.
I'm only on Lyrica and Cymbalta for pain - doesn't help much. Is anyone else taking Lyrica and getting a bad rash? My anxiety makes the pain worse I know but I wouldn't be anxious if I didn't have so much pain. My circumstance is a rather long drawn out story. I started with neck and shoulder pain a year and a half ago. They told me it was just fibro. I couldn't take the pain any longer and checked myself into the hospital for anxiety and they did an MRI. Next thing I knew they took me off my anxiety and pain meds and I was to major hospital for disc fusion on my neck. If I had waited for my neurologist apt. he said I would have been paralyzed as my spine was swollen from C3 - C7. Now I get anxious for no reason, it's automatic when the pain hits or I can't distract myself (which is more often now with the pain) I went through some nasty reactions to drugs for about 4 months including withdrawals. One medication almost killed me as the pharmacy gave me an overdose. Am just starting to come back from all this but it made the fibro 10 times worse. I am going out regardless so I don't get depressed any further but my walk is wonky, like the floors and walls in a fun house and have a constant ringing in my ears. Am also on Remeron for sleep. Dr. says it's Lyrica for the rash but that may be because he was the one that prescribed the Remeron. I have severe tinnitus so loud places like the casino I tried to go to yesterday make the pain a lot worse and I think I tighten up all my muscles so squish the discs in my neck. Long story - sorry.
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