hi, im so sorry for the delay gettin back to u all,,to thanx u for all ur replies, if been in and out of hospital with severe pain, in my chest,,now im in agony with sharp pain round my ribs and upper back, i can t stick on my feet,and living alone,im just crying all the time,,so lonely,,no one to talk it over with,i just feel i cant take much more,,iv been getiin more severe pain than usual for the past few months, but thanx again for caring.
In relation to the weather I think people with Primary Fibromyalgia are most sensitive to changes in the atmospheric pressure. I have the most trouble at the point when the weather changes, or when the pressure changes. I don't necessarily mind if it's cold as long as it stays that way for a while. If the weather changes though it puts me in a flare. Even if it's warm front or a high pressure change- that too can place me into a flare.
I also have trouble with humidity I think because I suffer from a fairly bad case of osteoarthritis along with Fibromyalgia. I live near the Great Lakes, which makes things even worse for me. It's like a double whammy. If a sudden warm front flies in during the summer over Lake Michigan, I am in BIG trouble!!!! Talk about humidity!!!!
Lately I've been all messed up because the weather can't make up it's mind- does it want to be cold or mild, foggy or rainy or snowy or what??? My muscles are sore and painful, my bones are creaking, popping, cracking and snapping (my husband says like the cereal). What the heck??? I see my rheumy this week. Hopefully she can save me! ;)
-Dusty
I have the nerve pains all over my body. I am hoping to get my family doctor to put me on Neurotin to help. It is keeping me up at night and sometimes I feel like I'm going to lose my mind with it. I've been taking benadryl (hardly helps except for the sleepiness) and putting on the blue ice gel to try and numb it.
Yes, to the increased pain with the weather. Rain and cold weather are bound to make your pain worse. We usually have osteoarthritis coupled with fms. according to the arthritis foundation. and I do have it. I feel that we need more research on fms because it affects so many people and it increases every year. My daughter is always saying other people don't have it as bad as you. Then i read an article saying there are different levels of fms.
When I was diagnosed in 1995 finally after three years of suffering the dr. said I had it in all 18 pressure points. I believe I have a severe case. So there are different levels. I think my daughter is just scared because she doesn't want me to be sick. She remembers me the old way, full of life and able to tackle anything.
I to wish I was not sick.
k.
I forgot to mention that I do have migraines and headaches often. I've also had 'surges of electricity' in my head that last 2-3 seconds but it is more painful than giving birth.
I was diagnosed with FM in 2002 after years of having chronic widespread pain and 6 years of Phy. Therapy for multiple things. The weather is a definite factor in the severity of pain. Last winter was the worst! It felt as if my legs were having 'seizures' with rapid firing here and there and here again.....very painful!
My question now is, "Does anyone believe that the 'choking/strangulation' feeling I have been having for 2.5 years has anything to do with the FM? I'm always pulling at my shirt around my neck, but that isn't the problem. The choking feeling can get so bad that I have coughing fits. It also feels like the blood flow to my head is less than normal making my head feel heavy with a dizzy feeling even though I'm not dizzy.
I have had just about every problem there is when it comes to pain.
There are nights that I have to wrap my ankles/feel so they are in a standing position when sitting.
I also have muscle twitching that can last for 12 hours, not painful but annoying, in arms, legs, abdominal, chest, shoulders....everywhere basically.
I developed PVC, PAC, tachy-brady, etc. 2.5 years ago....before the choking feeling began.
oh and I also have buring sensations especially in my legs. Lately it has been in my left calf everyday off/on all day for 3 weeks now. I sometimes get 'fire patches' on my legs. I call them fire patches because they have the burning sensation but turn red. You can feel the heat through clothing.
GEEZ, one more thing to mention just in case someone has the same thing or any other idea. Last Feb 2009 I had night sweats for 4 weeks, but the extreme heat wasn't only at night, it was during the day too.
AND TO TOP IT ALL OFF.....all tests including scans are normal. (except for EKG which showed arrhythmias)
I'm thinking in addition to FM I may have an intracellular magnesium def. Serum MG was low at one point but that would be an obvious knowing how mg levels work.
PLEASE help and give your opinions/ideas/comments!
Thanks...sorry so long but lots of problems to mention