Consistent elevated lipase levels

[kcaroline]

For the past 5 years, I have had on and off again abdominal cramps and bloating. Through a series of visits to my doctor, we determined that I have elevated levels of lipase. I am no lower than 280 and as high as 480. I am 42 years old, very active, mid stress level job, do not drink or smoke. I had an ultrasound and CT scan and pancreas, liver, gallbladder - all look normal. I took everything out of my diet - gluten free, lactose free, sugar free, etc. and slowly introduced those items back in to see if I was allergic and no results from that either. My abdominal cramps come and go. Sometimes I have them for two or three days and then nothing for months. The only thing consistent is my high levels of lipase. Interesting to note, I have very low levels of LDL and always have had lower levels. Do you have any thoughts as to what could cause or be affecting my high lipase levels? No one in my family has these levels and no family history of liver, pancreatic or gallbladder diseases or cancers.

[k2626]

Mine has been slightly elevated for a couple wks, I have had pain there too. My US and CT w dye was fine. I am scared its cancer (my dad died of PC this summer)>

What else could be going on?

Very very scared

[crambone]

usualy lipse levels will be high during an attack" but not all the time.
..if the culprit is the pancreas,at least thats how pancreatitis usualy presents itslef,,,,i have seen people with pancreatitis have no elevated amalayes/lipase at all,untill they had an attack,,,and they returned right after it was over,,,so constant elevated levels could be more then just pancreas issues.

[crambone]

ya,sounds like autoamune pancreatitis,,,,but i think there is more then just the pancreas that can cause high levels of lipase isnt there?,,,,liver issues or something,,,its all tied together,but maby not pancreas,please let us know

[k2626]

I am in a simliar boat though will do EUS soon

[CalGal]

You may want to check to see if it could be a form of autoimmune pancreatitis.