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148354 tn?1211233906

does chronic appendicitis exist?

Here I go again looking for answers! at 16 was told I had IBS,wasnt too bad nothing I couldnt handle or tolerate..have some bad days constipated or the big D with cramps but didnt hit me like what im having now for last 7 months,usually had relief after bm, now its severe abdominal pain,belly button area, low left and right side pain,,sometimes radiates upper area and pelvic/rectal pain,stabbing pain,not crampy.Lost almost 60lbs,metal taste in mouth,heartburn,bloating,bad nausea,hair loss,appetite loss due to the pain (was on ensure but just now starting solid food..nothing agree's with me)bm's alternate,fever and night sweats,trapped gas (i havent been able to pass gas in months)alot of bowel noises and rumbling.After bm still continue to have urge to pass gas or stool but cant,Many trips to er,nothing can be found wrong,but this mimics appendicitis or  sometimes partial bowel obstruction,few times a month wake from sound sleep with "gassy diarrhea attacks" feel clammy/sweating/ feel like im gonna die.In April was in hospital for 3 days for this pain.Have had many procedures,tested for porphyria,celiac lactose intolerent,sprue,negative,mercury/toxin poison now.waiting on results.Many catscans,pap/pelvic exams,and ultrasounds,
Colonscopy-normal?,gi noted on biopsy some inflammation,said its ibs.
endoscopy-normal
hida scan-gallbadder is ok
laparscopy-no endometriosis
kidney ivp-no stones
I'm 28 and use to be active,I had to quit my job (cosmetologist) because most of time I cant even stand up,any ideas or similar experiences appreciated,ty (:
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Avatar universal
Angellmarie, I have just read your post on your experience with your appendix.
So good to read you stuck to knowing your body and got the surgeon to remove the appendix.

I had an infected appendix about 5 years ago, excruciating pain and was told I had  a stomach bug by 2 drs. By the 3rd wk I couldn't put up with the pain and sickness any longer finally a Dr who said it was appendix and went to a specialist who said i could either have it out or keep it either way I'll always have problems with my stomach so I chose to not have the surgery as I thought he knew what he was talking about.
I was told by drs I had IBS for all these yrs.
My stomach has now been playing up really badly for 3 wks, ultrasound and blood test showed clear for appendicitis so I was told it was constipation :-/

The pain has now changed to shooting pain in that one area where the appendix is so had a cat scan today and find out results tomorrow.

I did find one specialist recently who told me about chronic appendix which i hadnt heard of before only heard of the acute appendicitis and suggested cholonoscapy, I put it off as the other Dr said try laxatives which havnt helped so looks like I'll b getting the cholonoscapy.

Thanks for sharing your story I can relate to all the pains.
Helpful - 0
Avatar universal
Urge to have bowel movement but can't go. Nausea, sweating, pain, unable to pass gas. Have you had a CT of abdomen? Could be Meckel's diverticulum. Supposedly rare and even rarer that it causes problems, but this sounds just like what my husband went through.  Meckel's was found after several years of ER visits. Doctor said he had never seen one so inflamed/large (though maybe he had not seen many). It had bled, causing severe anemia (hemoglobin 5). He had issues for 15 years before it was discovered. I think CT is the only way to diagnose, but I may be wrong. Good luck.
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Avatar universal
My son last July started getting a pain on his right side across from his belly button. he also had acid reflux sometimes to the point he would vomit.
This pain eventually became constant,
He had an endoscopy which said he had some irritation related to acid reflux. Hhe visited the ER  at least eight times.in a few months
they performed two cat scans with in three months and ultrasound of his liver area. The first cat scan said he might have Vasculitis but blood work looked normal. The second cat scan said he might have Crohn's. They then did a MRI next which said he did not have anything wrong except a slight fluid abnormality near his kidney.  He then had a colonoscopy which said every thing looked fine.  He still was in constant pain. They referred him to a surgeon and he elected to have his appendix removed. They did this and did find a band attaching his appendix to his intestines and figured this is what the problem must be.  They claim the looked around and everything else was normal and they removed his appendix.  Days after his pain came back, same pain same place... they referred him to pain management which he had two injections and they did nothing. He has been for acupuncture and nothing... he still is in constant pain and we have no answers. He still gets acid reflux, he also noticeably burps a lot.  
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Avatar universal
I am having severe pain my right side.  It's to the point that I cannot function.  I am taking pain meds.  The more I move around the more it hurts.  The factor that keeps showing up is a kidney stone which my urologist says can not be the cause of my pain because there is no blockage.  I have had a million tests including 2 ct scans, ivp , gallbladder scan, ultra sound, endoscopy.  All normal.  My urologist said he thinks chronic appendicitis, but the ct scan was normal.  I feel like a hypochondriac.  The urologist doesn't want to do anything.  I had lithotripsy in Jan 2013 which did not dissolve the stone.  Everyone thinks it's the stone except the urologist who thinks appendix.  But no test confirms.  What do I do next?
Helpful - 0
Avatar universal
Hi my name is Sana(23)! Waw i am sorry that you had such pain. I have pain 1 year exactly where appendix is..and doctors one year say i am healthy and they did send me to cat scan but it did not show anything. they dont believe me that i have chronic appendix so i fly to Europe to make a surgery.
Helpful - 0
Avatar universal
Good day, I really wondered if the weapon that you obtained from your pathologist in where it was confirmed that you had acute appendicitis - had silenced your surgeon?  That means 1% of his failure to accommodate you into being sympathetic became his worse nightmare.  99% of time he claimed to have studied and relied on evidences from your blood tests and other reports struck him too hard.  Doctors have ears, but only a small number of doctors will be more willing to accommodate without hesitations...

So how far have you been doing just after the laparoscopy and did you ever have any no pains in the long period time?  I really wonder....because I have similar experiences like yours but from different angles but with classic symptoms but rarely with no sign of fever....
Helpful - 0
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