does chronic appendicitis exist?

[Ms_Makita]

Here I go again looking for answers! at 16 was told I had IBS,wasnt too bad nothing I couldnt handle or tolerate..have some bad days constipated or the big D with cramps but didnt hit me like what im having now for last 7 months,usually had relief after bm, now its severe abdominal pain,belly button area, low left and right side pain,,sometimes radiates upper area and pelvic/rectal pain,stabbing pain,not crampy.Lost almost 60lbs,metal taste in mouth,heartburn,bloating,bad nausea,hair loss,appetite loss due to the pain (was on ensure but just now starting solid food..nothing agree's with me)bm's alternate,fever and night sweats,trapped gas (i havent been able to pass gas in months)alot of bowel noises and rumbling.After bm still continue to have urge to pass gas or stool but cant,Many trips to er,nothing can be found wrong,but this mimics appendicitis or  sometimes partial bowel obstruction,few times a month wake from sound sleep with "gassy diarrhea attacks" feel clammy/sweating/ feel like im gonna die.In April was in hospital for 3 days for this pain.Have had many procedures,tested for porphyria,celiac lactose intolerent,sprue,negative,mercury/toxin poison now.waiting on results.Many catscans,pap/pelvic exams,and ultrasounds,
Colonscopy-normal?,gi noted on biopsy some inflammation,said its ibs.
endoscopy-normal
hida scan-gallbadder is ok
laparscopy-no endometriosis
kidney ivp-no stones
I'm 28 and use to be active,I had to quit my job (cosmetologist) because most of time I cant even stand up,any ideas or similar experiences appreciated,ty (:

[Caryopteris]

Take magnesium citrate in the morning and vitamin D 2000 IU in the morning.  

Every evening take calcium.  

Continue these as long as you live in Alaska, at least.  

You can also take Miralax, which is a powder you mix in water.  

If you drink milk, consider stopping it.  Can you get almond milk up there?  If not that, flax milk or rice milk?  Hemp milk?  No ice cream .. avoid all real dairy.

If this does not resolve your symptoms, get tested for Celiac disease.  

[KalebAK]

I am in desperate need of help with my pains. I'm on my 5th year of chronic pains, digestive issues, lack of energy, and nothing showing up on tests.
I live in Alaska where I get free medical but the doctors here have completely outcast me for any sort of help. I have no money for other types of medical insurance and I have no idea what to tell these people to get any real aid. They laugh at the paperwork I bring in explaining chronic appendicitis and want to send me to pain management therapy for IBS. I've been given anti-depressants to see if its stress related. They do nothing and I'm running out of hope.
My lifestyle has a lot to do with labor jobs to make ends meet, but I feel bed ridden six days out of the week. I have a daughter to be born just next month and I can't even function in society anymore.

Any advice or connections to help me get rid of my appendix would be greatly appreciated.

[DeterminedToSolve]

So glad to have found this forum. After 2 ER visits, I am so ready to be pain free. How do I find a surgeon in my area that believes in Chronic Appendicitis?

[AJLind]

I am reading this board with so much interest.  I have had chronic TERRIBLE pain in the lower right.  It started in 2006 with episodes that were so painful that I would go to the Jupiter Medical Center ER here in the Southeast portion of Florida (Palm Beach).  Each and every time they find nothing wrong.  Had a bout with sudden frank (bright red) rectal bleeding and had a colonoscopy only to find...nothing wrong.  I have had terrible pain in the lower right in my groin area that extends through to my back (pain) and is in the lower right.  They have never found a cause.  I finally had to start taking pain meds to control the pain.  Long story short, I have had several episodes with klebsiella bacteria and repeatedly have to battle infections with it throughout the year(s).  Finally spoke to a doctor who told me about ankylosing spondylitis (AS) and the connection between AS and lower back and groin pain and was finally diagnosed with AS.  This is a very complicated disease that can be confused for a lot of other medical issues, but you can read more here:  http://www.spondylitis.org/about/complications.aspx  I control the pain with pain medication which includes an anti-inflammatory (VERY important) and avoiding wheat and dairy or anything that causes irritable bowel symptoms.  I also sleep a lot more.  I cannot hold a normal job due to fatigue and pain, so I've had to adjust to that and I feel badly for my DH.  I just hope that I help someone else with my comments.  Last thing?  Most laboratories do not test for klebsiella until every other bacteria is negative.  Ask for it when having urine analyzed.  It turns out that many AS patients have klebsiella and the klebsiella (bacteria) is causing the inflammation and it turns out that many AS patients have a genetic defect which leaves their bodies unable to protect against klebsiella so people are infected with klebsiella which then causes inflammation and over time becomes AS.  Good luck everyone.

[jjamsj]

I never post on these boards but, I have to say thank you. Your story has given me a new resolve to get an answer as to why I have been in pain for at least a year and a half. I have often wondered about chronic appendicitis. Now to get a doctor on board with me.

[mommabear464]

Our 10 year old son suffered for weeks with exactly the same symptoms everyone here is describing.  When I finally took him to the local Children's Hospital ER for the 3rd time (after countless dr. visits on the side and every test in the book), the finally admitted him because he had lost five pounds in three weeks and looked terrible - healthy kids are not supposed to lose weight because they cannot eat!  Anyway, the staff was amazing and promised they would figure out what was wrong before they sent him home.  But, when all tests showed nothing to be wrong, they scratched their heads in wonder.  By this time, the surgeons decided to do exploratory surgery - while the gastro doctor was convinced it was his appendix, the surgeons disagreed completely.  But, the agreed to go in to "check it out".  Well, low and behold, it was his appendix AND a bowel stone.  It was a horrible, terrible journey and we are SO glad we fought for surgery.  As soon as he awoke from surgery, the pain he had been suffering was gone!  There IS A SUCH THINGS AS CHRONIC APPENDICITIS - our son lived it and we witnessed it.

[ChristaCS]

Our 12 year old daughter just had a similar experience.  Acute abdominal pain in her RLQ, constant nausea and zero appetite. The first time we were at Children's ER, the surgeon was ready remove her appendix, but the ultrasound and blood tests all appeared normal.  No surgery, sent home suggesting she had a stomach virus.  After another trip to the ER and our pediatrician with "normal" CT scans and further blood work, we needed up back at the ER for a third time.  This time she was admitted because of weight loss, and not having eaten in 12 days (she was drinking all her calories, couldn't get her to eat as it was too painful).  After a colonoscopy and endoscopy were clear, our amazing GI suggested removing her appendix.  The first surgeon wouldn't do it, so our GI found another surgeon (the original one we saw the very first time in the ER) who agreed to do an exploratory laparoscopy and appendectomy.  Her appendix was 3 times longer than normal and contained excess amounts of eosinophils.  Post surgery, all original symptoms have disappeared.  Her appetite was back the next day!  It was frustrating that it took so long to figure out.  Don't give up!  You know your child best.  We thought it was appendicits from the 2nd day of her feeling ill.  All the Drs seem to have been stumped, and had even suggested an eating disorder (ARVID) to us as the next possibility.  They labeled her condition, Chronic eosinophilic appendicitis, and our surgeon said this is in fact not uncommon.