Lyn, THANK YOU for posting on roemheld syndrome, you gave me something that all these doctors and clinics couldn't, That is my symptoms to a T. I've been dealing with this for over a year now. Several ER trips and those nurses and docs made me feel like I was gonna die. I'm already freaking out with my heart going crazy.
At least I have something concrete. I have been going crazy trying to eliminate certain foods, positions,allergies, meds, minerals..but no rhyme or reason. The same thing I eat one day canl cause the symptoms and the next day I will not affect me.
I'm not a fan of it, but that wiki article suggest cabbage. That is something I haven't tried. Ginger seemed to help for awhile, but yesterday I had arrythmiashort of breath. pretty much all day with a huge pressure in top abdomen pressing. Wasn't until I went home and had a couple beers that I felt better. beer usually can help it, crazy as it sounds.
Thank you for your response. I agree whole heartedly that its a digestive tract issue and after reading through the posts, yes digestion is something we all have in common, but I wonder what the common denominator is for this digestive upset. Stress? Anxiety? Food intolerances? Thyroid issues? Etc. I wonder why this affects some and not others? It's pretty bad and quite scary, that a bunch of strangers have to figure this out on their own because a doctor can't. Doesn't say much for these so-called "doctors". I'm starting a doctor hop and I'm not going to stop until I find that one "needle in the haystack" that is going to take the time to figure this out and give me my life back. This is ridiculous already. We should be able to eat, bend over, turn, walk/run, sit etc...without our hearts skipping a beat or going into afib. This is not normal and beyond annoying, frustrating and debilitating. I will share any knowledge that I gain on my mission for an answer and cure and hopefully, I can help shed some light on this annoyance. I'm happy to have found some recent cases as most of the ones I've come across are from a few years ago, with no updates, so thank you so much for checking in and keeping an eye on this thread! :)
Thanks for posting. Read what others have posted and you'll see there are common denominators. Unfortunately none of which the medical or scientific community have caught up with enough to come up with a common solution to what has become a relatively common problem. My hypothesis has been without realizing it we blast our digestive tracts on a daily basis going back to child hood with things that are not natural, not digestable or normal to our systems. Things like processed foods, drink, smoking, stress and medications particularly antibiotics to name a few all have a negative impact that all invite bad bacteria, viruses, parasites and mold to make homes in us that ultimately over time erode our intestinal walls and in the end give us symptoms we never expected to get nor can explain. If the digestive tract and or how it is affected is key to a lot of this as I have suspected for a long time and why I started this post then it is a definate focal point. I have treated my own to varying degrees of success with many very good natural products that have given me relief. Sometimes I have had enough relief and felt good for so long that I thought perhaps I had conquered it but unfortunately it comes back eventually so I have not yet found the magic bullet or cure. Short of feeling that if I where to have cut out a certain portion of my colon or intestine from where these symptoms seem to spring from I don't know if there is a real possibility of returning it to a more youthful state for good but I had my own successes that gave me hope and I'll keep trying and will keep checking in hoping that others may have some suggestions that may have helped them that in turn can help others.
I came across the term Roemheld Syndrome aka GastroCardiac Syndrome, throughout my years of research. So yes, this condition DOES exist, but still no answers as to why these so-called Doctors say otherwise and why we are still suffering and left to figure this out and deal with this on our own. Check it out, if you haven't already and let me know what you guys think. http://en.wikipedia.org/wiki/Roemheld_syndrome
I have been "dealing" with this issue for around 7-8 years. I have to think about every single move I make or my heart will skip beats or go into afib. I know full well it is do to with stomach activity because when my heart goes into afib, all I have to do to get it to go back into normal rhythm is get the gas out of my stomach. I do that by pacing, drinking something fizzy and/or reclining to get the pressure off my stomach. My heart has been checked and is totally fine. I saw a gastroenterologist that dismissed my concerns and I gave up and "lived" with this problem for many years. It is such an inconvenience that it has limited what I can do in life. Im sick and tired of living with this and tired of reading that there are no doctors that can see a connection. Clearly, there is. Especially since Im not the only one with this problem. The weird part is, is that I feel the afib (rapid and skipped beats mixed) in my stomach, even though its my heart that's going crazy. There is a pulling/tugging sensation at the trigger point. There HAS to be a cure for this and if there is anybody that has found one, PLEASE let me know. I'm in the midst of another gastro referral, but they're all turning me down because Im "not an emergency" and "they already have too many patients". If I sit the wrong way with a full stomach (gas or food), it'll trigger palps/afib. If I turn the wrong way, same thing. I have to hold my breath if I bend down to pick anything up. Even doing light housework exhausts me to no end. This is ridiculous. I no longer know what hunger feels like because I have to eat to push the gas out of my stomach. My stomach is always so "angry" when its empty and when its digesting. I don't understand why this started or how to make it stop. I welcome any comments or talking with you further because it helps to know that there are other people out there with this "mystery condition". Maybe together we can find a common denominator? Thanks for listening!
Only problem with antacids even ones seemingly harmless as TUMS is that while they can initially help they often can in the end cause a lot more problems by causing the body to make more acid in turn causing a lot of intestinal inflamation which in turn causes very slow elimination (sometimes rocks) all the while trapping gas from escaping and just becoming a vicious cycle. The more you use generally the more you'll need. These are loaded with calcium. While a lot may not actually get absorbed enough still does that can throw your systems PH ratios out of whack ie. magnesiums, potassium, chloride levels etc. When eating (particularly acid & gassy forming foods) try taking a 1/2 - 1 teaspoon of ground up black seed just prior or during. Also available in capsules. Calms and heals digestive tract problems and helps prevent and eliminate gas naturally. Don't think it conflicts with medications since it technically is an indian spice/food similar to curcumin and turmeric.