Aa
Aa
A
A
A
Close
Avatar universal

Chemo/Radiation Tachycardia Induced Cardiomyopathy with low LVEF

Hello,
First let me say I have a fairly complicated medical history.  In January 2003 I was diagnosed with Stage IV Nodular Sclerosing Hodgkin's Lymphoma with: a mass in my chest; involvement of two cervical vertebra and two thoracic vertebra; lesions on my pelvis; bone marrow involvement; and a small node in my right jaw.  I received ABVD chemo and 30 days of radiation of the four vertebra and pelvis.  I have been in remission since treatment completion in late 2003.  I did experience some complications...most notably severe muscle atrophy where radiation was administered to the four vertebra and suffer from almost constant muscle spasms in those areas.  I also have some nerve damage from the four (8 punches) bone marrow biopsies I received.

About four years ago (2013) I started experiencing unexplained constant tachycardia (rapid heart rate) that at rest ranged from 110 to 170 bpm.  At that point I started seeing a cardiologist.  I was diagnosed with tachycardia induced cardiomyopathy and my first ECHO showed LVEF of 45 mildly reduced.  After about a year of searching we settled on Toprol XL, but even at the most tolerable dose I was still mildly tachycardia.  I've had my LVEF checked annually and in 2014 my LVEF was 40, in 2014 it was 32, in 2015 it was 35, in 2016 after tinkering more with my Toprol XL there was good improvement to 50, but in 2017 it dropped again to 40.  In May 2016 my Cardiologist added a new Rx Corlanor and for the first time in several years my resting heart rate is in the normal range.  The thinking is that Chemo (specifically Adramycin that has been found to be toxic to the heart) and/or radiation (because where I received radiation to the two thoracic vertebra is directly opposite my heart) caused damage to the heart and specifically the left ventricle.  Now finally close to a question.  After my last ECHO show reduction again in my LVEF my Cardiologist stated I am now considered in Advanced Heart Failure...I received this diagnosis through a messaging system so I have not spoken directly to him.  What exactly does this diagnosis mean...does this lead to death...does this mean a heart transplant (which I WILL NOT DO by the way).  I beat cancer, but now realize the weapon (chemo/radiation) used to kill it, may in fact kill me.  Is there anyone else out there that has dealt with this and if so how was it treated...just looking for some answers and/or questions for my Cardiologist when I finally get in to see him.  Any help will be gratefully appreciated.  Sorry for the novel.
0 Responses
Sort by: Helpful Oldest Newest
Have an Answer?

You are reading content posted in the Heart Disease Community

Top Heart Disease Answerers
159619 tn?1707018272
Salt Lake City, UT
11548417 tn?1506080564
Netherlands
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Is a low-fat diet really that heart healthy after all? James D. Nicolantonio, PharmD, urges us to reconsider decades-long dietary guidelines.
Can depression and anxiety cause heart disease? Get the facts in this Missouri Medicine report.
Fish oil, folic acid, vitamin C. Find out if these supplements are heart-healthy or overhyped.
Learn what happens before, during and after a heart attack occurs.
What are the pros and cons of taking fish oil for heart health? Find out in this article from Missouri Medicine.
How to lower your heart attack risk.