REMOVAL OF ICD

[lenon]

I HAVE BEEN DIAGNOSED WITH ATRIAL FIB AND V-TACH ALONG WITH VENTRICULAR FIBRILATION. I ALSO HAVE CHF. WHAT ARE MY CHANCES OF SURVIVAL IF I HAVE MY ICD REMOVED?

[BlueKnight007]

WOW, Now I want mine OUT. And wish I saw this Community Before It was implanted in me. For two years now I have NOT let them put it in. I have a operational Aneurysm plus I have to have a upper and lower GI, and they wouldn't operate till I did it.They said I wouldn't  survive either GI or the operation. My Aneurysm is  5.3cm and ready to bust. Because of the Medication I'm on they said  had to have it implanted. So NOW it's in. The reason they first  told was I could fall sleep and not wake up. AT rest my heart rate can be as low as 50pm. Blood pressure 74/45. Shoot I've been known to walk in the hospital that low... I do NOT WANT THIS THING TO ZAP ME. I'm going to demand that they take it out. I have pain issues which requires medication which is a another issue. I wish not to be in a wheel chair in pain and foaming at the mouth.
I wish every on in this forum Good Luck,


BlueKnight

[Mom2four85]

I'll find out Friday if I have to have my leads replaced, which has made me cranky and have nightmares about.  My ablation 2 days before implant left me with nightmares and depression over my health issues - my heart stopped 3 times and I am scared to death to have another surgery.  Nightmares started last week and I'm so fatigued and miserable from all this I'm ready to just say forget it.

From my previous post in this thread you can see I have VT and VF episodes but still I question if I want it replaced. UGH I can't stand having to go almost 2 years and lead movement and possible fracture/leakage - am I supposed to do that every 2 years and live in fear that maybe it won't work when it's supposed to?

I don't know what the dr did, but I've had nothing but pain and problems in the area where he implanted it.  The vein is so prominent and often goes numb and tingles where you can see it's placed that I wonder if an artery isn't clogged or pinched or something similar to that.

taken1111 we all understand how you're feeling; unless you've been through what we have, I think it's difficult to empathize with what's going on.  Please feel free to PM me if you need to talk =)

[taken1111]

I too want mine removed. I have not had a shock (knock on wood) and I only depend on my pacemaker 1%. I have been suffering from depression since I had it implanted and I feel like I have nobody to talk to about my feelings. I try talking to my husband and he just puts a guilt trip on me. Everytime I go to the cardiologist, they say my heart looks great. I just feel like I don't need it, but am scared to tell my dr because I don't want him to offend him. Can anyone give me any advice?

[jim320]

I have had an ICD in place for the last 3 years, after being diagnosed with Brugada Syndrome. The lead fractured almost a year ago, and the device has been switched off since that time. I am planning on having both the box and lead removed in the next couple of weeks.
I have never needed the device since it was implanted, and therefore feel that the risks of having it outweight the benefits for me..

[hurricane1121]

Ive drove trucks for 19 years but had to stop when I had my ICD implanted Aug 2009, my heart EF was 30% , 2 months ago I had another echo cardiogram and my EF is now at 50-55% (which is back in normal range) and I am having my ICD removed on Dec1st. The doctor told me that they were gonna leave the leads in because it would cause a lot more trauma and, God forbid, if they would ever have to put it back in they would just have to put the unit back in.I credit God and medicine for my recovery so good luck with your situation.

[drak]

You know, this really makes me sad with the bad experiences with ICD's.  I'm only 24... had and ICD placed in me when I was 21.  I've had bad times with it and have been leading a better life style by sleeping for at least 8 hours, working out, and eating healthier... but reading this discussion does make me feel sad since I'm so young with this.

This really discussion does make feel depressed again. How do you coup with this problem?  So alot of Dr's go against taking it out?  Is oblation a good option when given the choice?  I have lots of questions....