Interferon Syndrome

[thevoice_692001]

I want to know if there is now a Diagnoses of Interferon Syndrome
I not only went through 3 rounds of treatment for Hep C I had every possible side effect there is and wrote a few chapters of more sides, my Dr was a great man and did everything to help me but now almost 20 years later I am still suffering from almost everything I was during treatment and then some
I have more  diagnoses since treatment but is there a sound diagnoses of "Interferon Syndrome"

[otterwatcher]

Haha! Small world indeed. The boiling herbs for hours thing yes all too much for me! The acupuncture was wonderful though.Good to meet you also.

[Bruin1903]

Yes am seeing John ! He has given me Herbs in powder form so that bit is
not too taxing. I find him impressive as he has certainly walked the walk in
terms of how he approaches his practice. I would not care to live in that part of
town either !...Did you find the herb regime hard because of boiling them up etc. ? A lot in common indeed....good to meet you Otterwatcher.

[otterwatcher]

I'm an ex South Londoner! Are you seeing John Tindall? I used to see him when I lived there but found the herb regime hard work! I loved the free acupuncture at the Gateway clinic,that's the only thing I miss about living there! Interesting that you were very ill during tha acute phase of hep c-yes I was diagnosed with non A non B back in the 80's-we have much in common!

[Bruin1903]

Yes my experience the same. I was quite ill with Hepatitis though when diagnosed it was in historic times...non A nonB . I was active and relatively
fit when I treated and have never been well since commencing interferon.
However, like you, I seemed to get worse after the 3 month period just as
I thought I would be getting better. Currently am doing diet...no wheat, no dairy, very little red meat. Juicing lots of healthy things and just started chinese herbs and acupuncture with someone in south london who has had a long experience working with Hep C...I do rate him but he is about 140 miles from me so quite inconvenient.

[otterwatcher]

I agree,I am treating this as a Post Viral Fatigue Syndrome-I think the main problem is that our natural interferons are thrown out of kilter making our bodies feel as if they are fighting a virus all of the time,even after the virus has been eradicated. Were you very unwell in the acute phase of hep C? I've read that you are far more likely to be affected by Post Viral Fatigue Syndrome if you were and I was very sick for a year when I was first infected although I recovered and was active and fit when I started treatment 17years later.
This is not depression,this is interferon.

[Bruin1903]

I so relate to what you write on this forum. For me also it was 3 months post treatment that I started to get worse. I feel like a beginner in my battle for health post interferon so do not have much experience to share except that whatever I have operates like Chronic Fatigue Syndrome and I always suffer after exertion. Thank you Otterwatcher for keeping posting on this site. It has helped me not feel crazy. I have suffered from depression before but what is going on IS NOT Depression ! A different beast altogether.