Interferon Syndrome

[thevoice_692001]

I want to know if there is now a Diagnoses of Interferon Syndrome
I not only went through 3 rounds of treatment for Hep C I had every possible side effect there is and wrote a few chapters of more sides, my Dr was a great man and did everything to help me but now almost 20 years later I am still suffering from almost everything I was during treatment and then some
I have more  diagnoses since treatment but is there a sound diagnoses of "Interferon Syndrome"

[dontworry_behappy1]

I don't diagnose people.  I'm not a doctor.  Discussions are about issues
people have after Hepatitis C treatment.  Since I don't experience the drastic interferon outcome of Hepatitis C treatment….. its hard to know exactly what the issues are.   Apparently, they very from one person to the next.

What I do see about "Post Interferon Treatment"  is it very much like
"Post Chemotherapy".  Both have many of the nasty outcomes to some of
those receiving these treatments.  Some people will be left with illness just due to the chemotherapy.   I don't doubt interferon can leave permanent
long term illness.   But this is true with many serious therapy drugs.

Some people aren't effected at all.  I think this is why doctors fail to
acknowledge the effects of interferon.  Or they just refuse to say.  Like
chemotherapy for cancer and other illness…. there is always a chance
issues can be from the exact drug that treated your decease or illness.

I don't think any can predict how these drugs will effect people but with chemotherapy people don't seem to be as angry.  I'm truly sorry that
this has happened to people who honestly thought this would cure the
problem and move on.  

I don't mean to insult those who have experienced this.  I do believe that
there has to be depression due to results like PIS.   I'm only suggesting
that depression might be related to some of these symptoms.    

[thevoice_692001]

I know your diagnoses or guess's is not correct I run over 25  support groups with people dealing with 20 years out and all of us have the same type of symptoms the only thing tieing us together is Interferon and Riba
I do not believe it has anything to do with depression at all
I do know a lot of us that suffer with multiple dx's have some depression but that's expected, I have MS as well and the most used drug to treat that is also Interferon based with the same symptoms so there is most certainly a tie in between all of us

[otterwatcher]

hi,I take dihydrocodeine for pain and nitrazepam for muscle spasms and sleep.I tried Lyrica and gabapentin but didn't get on with either.The liver consultant said they can only treat the symptoms as they arise . There is nothing my GP can prescribe for the overwhelming  fatigue on the NHS.I also use eye drops/eye lube,artificial saliva for dry eyes and mouth and take antihistamines for rashes.I cut gluten and dairy from my diet and eat only healthy food.I take a multivitamin/mineral and vitamin D supplement,I tried other supplements but they were a waste of money.Hope that's helpful.

[dontworry_behappy1]

What medication do you take for "Post Interfereon Syndrome".

[otterwatcher]

I had none of these symptoms pre tx,,I was active,fit,busy,had a great social life, I started to feel better post tx then approx. 3 months later started to go backwards. The chronic fatigue syndrome is part of the PIS but I have other issues that started at the same time,some have developed since.4 years post tx the liver consultant gave me a dx of PIS after hosts of tests to eliminate other conditions.He told me 4% of his patients had the same side effects .
I am on full disability for PIS.
I don't understand your question re the code.

I am NOT depressed!

[dontworry_behappy1]

correction:  If this is to be a post interferon syndrome it has to be medication "interferon" produced and you CAN'T have any of those symptoms before
treatment.