ION-1 / ION-2 / ION-3 / LONESTAR / ELECTRON statuses

[still_above_dirt]

Hello all:

I thought that it might be helpful to all of us ION-1 / ION-2 / ION-3 / LONESTAR / ELECTRON folks to post an abbreviated synopsis of their HCV and post-treatment clinical trial statuses when they find out something definitive about their viral load, with as much info as they might be willing to share. This is or the benefit of us ION-"X" people so we can see how we are all doing, as well as for the benefit of others waiting and hoping to see whether sofosbuvir plus ledipasvir with or without ribavirin for 8, 12, or 24 weeks will comprise a viable treatment strategy.

I was going to try to start building a list of what I could harvest from this site, but decided that some people may prefer that I not do that, so, if people want to share their ION1/ION2/ION3 (and even ELECTRON and LONESTAR phase 2 studies) HCV status, they can.

I was thinking that, as much as people may be willing to share, that forum name, gender, genotype, liver Bx status prior to start of treatment, in which trial you participated, treatment regimen, whether treatment-experienced or not, whether PI-experienced or not, and since post-treatment viral load is quasi-blinded, whether you got the 24-wk followup invite or the sux2BU notification, or post-treatment private viral load test outcome, or declared cured or relapsed, would be helpful to share with the Community here and provide useful information to them. My status follows this post.

Thanx, all!

[Willy50]

According to my NP you have to flunk both 4 and 12 week PCR's to get a call back.  I tested early Dec and have heard nothing.  
Yet.  : )

On the balance of things almost all 12 and 24 week w/ riba are 95%+ cure rates, some seeing 99%.  

http://www.gilead.com/news/press-releases/2013/12/gilead-announces-svr12-rates-from-three-phase-3-studies-evaluating-a-oncedaily-fixeddose-combination-of-sofosbuvir-and-ledipasvir-for-genotype-1-hepatitis-c-patients

[grateful_to_be_here]

Same draw for me on the 26th.

I figured no news was good news it's just  been awfully quiet here so I wanted to ask. This forum has been a great support group and source of information over the past year.

Thanks

[nobodyone]

That is what coordinator said, no news is good news.  Due to holidays here, I have my blood draw tomorrow-12 week draw rot, although is actually only 11.3 week.   If we get apt for 24 week eot we are cured w/o a doubt!  I don't think there have been any relapses.

[grateful_to_be_here]

It's been very quiet here lately. I am going my 12 week draw after EOT next week. Any news on relapse in the study?

I have to assume no news is good news but. . .

Could we all be cured?

[nobodyone]

No you are not bad, my coordinator said I can have wine since I had no scarring on my liver and my liver was and is healthy.   If you have scarring  you should not have it though.   Ask your dr!

[Missy10000000000]

Hello, I'm so happy for you. I have a similar story. Am I bad to ask if a glass of wine is ok again ? :-)