Dont Ask a PCP a Question About HCV

[nygirl7]

As some of  you know I have been in the hospital since Monday. Long boring story. Anyways one of the problems was my system crashed my liver enzymes went up into the 100s, I was throwing up blood, my electolytes went nuts etc etc.


Anyhow this morning i asked again, the PCP on my case why did my LFTs go up so high I have been SVR for over 4 years and they have never been higher than 20/25.  She told me that my hepatitis came back and it was active. I said no I had my blood work last month and they were right in the 20s I have been cured over 4 years and UND for 6.  She had the nerve to tell me that our hep comes and goes that we are never cuired because it is always acrtive and so our enzymes will always go up and down.

Now, this was at 6am.  I haven't eaten in 5 days. They wake you up every two hours. I lost it I just said Doctor you obviously dont know what you are talking about so please leave my room because I'm not about to argue with you and your old out of date education.

She snarked at me in her Indian accent which I can't copy here and was like humph.................good this is why we have such bad reputations.  Why would we bother to treat if we had lfts in the 100s all the times out of the blue our hep would just come and go like she told me.

Oh I am MAD. I am outta here discharging now.  

Sorry I had to vent at the ignorance. I'm just so tired and so MAD.

[jpritch2]

Sorry to hear about your hospital experience.
Am thinking about you.
the good news is YOU did have the  knowledge to know this PCP was totally ignorant.
hang in there!
jack

[54Marie]

Sorry to hear you are in hosp. I'm a bit late in rhe chat.... Well i see that it's not so much better in US... Is there a Drs Association or governing body that oversees their conduct... You are a knowlegeable person. But if this STUPID Dr ever repeats the same BS to a HCV patient who is still fragile and freaking out about their condition this Dr can do a lot of damage!!  When you feel OK again report this incompetent ignorant!!!! Marie

[Magnum]

Wishing you a quick recovery....

Mag

[child24angel]

Please feel better soon

Many hugs
Elaine

[susan400]

Deb, I'm wondering if there is something going on in another body area, if that can cause the LFT's to go up?  I.E. like pancreatitis (inflammation of the pancreas), or gallbladder blockage of a stone?  I just hope that they get to the bottom of what it is and that you are well soon.  Susan400

[tashka]

I am so sorry for your ordeal. I hope you get better soon. These things (elevated liver enzymes) can happen when the patient is acutely ill. And it is not always possible to explain why. I hope everything will get back to normal after you recover. I am sure your hepatitis is gone for good.

As for ignorance, yes, you are right. Many doctors, especially primary care, don't know much about hepatitis C. And it goes for American-trained as well as foreign-trained doctors. Many are convinced that patients go into "remission" after treatment similar to remission of leukemia that can end at any time. They don't know anything about the concept of SVR. They don't read anything. And when their ignorance is pointed out they still refuse to remedy it.

I wish you speedy recovery. Try not to get to the hospital anymore! Let us know how you are doing.