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JmJm530 -- From Stage 3-4 to Normal -- Six Years Post TX
Just got my six year post tx, and it was 4.5kPa. Apparently, that’s pretty good and normal (stage 0-1) as the tech said it was lower than his scan-- and he’s never had any sort of liver disease!
My previous scans were in 2005, mid treatment (9.5 kPa) and in 2006, six months post tx (8 kPa). These correspond with stages (2-3), and early stage 2, respectively -- at least according to the correlations at the time of the initial Fibroscan trials.
Pre-Treatment I was staged at either 3-4 or 2-3 (depending on who read the slides) via liver biopsy.
It’s funny, because I almost passed on the Fibroscan, as it’s been so many years since SVR, and regardless of results, there wasn’t really anything I could (or would want to) do. Thankfully, the results were good. Just wish the rest of me was that normal. LOL.
A little hazy background, as it’s been awhile, and I couldn’t locate my exact notes:
Stated tx in early 2005. Double Dosed Peg for ther first 4? or so weeks, on high dose Ribavirin strategy that ended me in the ER within a few weeks of starting tx. After a few days off ribavirin, I then again continued on high dose ribavirin (with Procrit) for the duration of my 60 week treatment. Tons of sfx. It was not a pleasant experience.
I had a two log drop within a week or two (viral load was tested weekly) and UND within 4-6 week, can’t remember. In any event, it was considered an RVR. I was still told to tx for 60 weeks, based on both age – over 50 – and advanced fibrosis, as my only biopsy reading at that time was stage 3-4.
As those who have read some of my posts, I had very mixed feelings about tx for those with little or no liver damage – but that said, it certainly appears that tx can reverse fibrosis/cirrhosis, not only based on what I’ve read, but also on my own scan results.
To any of my old friends still here, you’re always in my heart, and I hope the very best for each and every one of you.
-- Jim
My previous scans were in 2005, mid treatment (9.5 kPa) and in 2006, six months post tx (8 kPa). These correspond with stages (2-3), and early stage 2, respectively -- at least according to the correlations at the time of the initial Fibroscan trials.
Pre-Treatment I was staged at either 3-4 or 2-3 (depending on who read the slides) via liver biopsy.
It’s funny, because I almost passed on the Fibroscan, as it’s been so many years since SVR, and regardless of results, there wasn’t really anything I could (or would want to) do. Thankfully, the results were good. Just wish the rest of me was that normal. LOL.
A little hazy background, as it’s been awhile, and I couldn’t locate my exact notes:
Stated tx in early 2005. Double Dosed Peg for ther first 4? or so weeks, on high dose Ribavirin strategy that ended me in the ER within a few weeks of starting tx. After a few days off ribavirin, I then again continued on high dose ribavirin (with Procrit) for the duration of my 60 week treatment. Tons of sfx. It was not a pleasant experience.
I had a two log drop within a week or two (viral load was tested weekly) and UND within 4-6 week, can’t remember. In any event, it was considered an RVR. I was still told to tx for 60 weeks, based on both age – over 50 – and advanced fibrosis, as my only biopsy reading at that time was stage 3-4.
As those who have read some of my posts, I had very mixed feelings about tx for those with little or no liver damage – but that said, it certainly appears that tx can reverse fibrosis/cirrhosis, not only based on what I’ve read, but also on my own scan results.
To any of my old friends still here, you’re always in my heart, and I hope the very best for each and every one of you.
-- Jim
Hi, I just started peg/riba, and I was curious as to what you meant by "I sure dont have the same problems I used to have." Are referring to symptoms prior to tx? They say HCV has no symptoms for the most part, but wondering if you did have some. Thanks
And congrats on your successful tx and progress; it is such a blessing for those of us just starting to hear such good news for others. Inspires us to keep going.
And congrats on your successful tx and progress; it is such a blessing for those of us just starting to hear such good news for others. Inspires us to keep going.
I just popped on to research another ailment and see if DD had answered my question about spouse autoimmune illnesses after Hep C treatment of other spouse and I saw your post. Nice to hear about your progress. I too treated back when you did and SVRd and my liver has hopefully healed as well. I sure dont have the same problems I used to have. I am headed back for another biopsy so I can pick up an insurance policy but wonder whether fibroscan might work for the ins company just as well. I wish you well my friend. You were such a resource when I was treating as were all the folks on this board. Thanks to all.
Hey Jim, to follow up from what Faith asked re tendonitis, I didn't mean to infer it was caused by tx., and in my case, it appears it was more likely from being sub-clinical, then clinically hyper-thyroid over a long period of time - all okay now., and while the tx exacerbated it slightly, it was something that was going to continue to worsen and reappear without thyroid treatment (which has now be completed)..... I am now starting to feel better than I have in years!!
Sorry for a resend, but I realized I mis-typed the address on the last post
THANK YOU so much for coming back to share this great news - you are giving us all a little more to hope for. I'm well past stage 3, having been diagnosed with cirrhosis 6 years ago, and I've still been harboring a small secret (for fear of having my bubble burst) hope that if achieve SVR maybe my liver will eventually heal itself. Now my secret hope doesn't feel quite as silly.
THANK YOU so much for coming back to share this great news - you are giving us all a little more to hope for. I'm well past stage 3, having been diagnosed with cirrhosis 6 years ago, and I've still been harboring a small secret (for fear of having my bubble burst) hope that if achieve SVR maybe my liver will eventually heal itself. Now my secret hope doesn't feel quite as silly.
THANK YOU so much for coming back to share this great news - you are giving us all a little more to hope for. I'm well past stage 3, having been diagnosed with cirrhosis 6 years ago, and I've still been harboring a small secret (for fear of having my bubble burst) hope that if achieve SVR maybe my liver will eventually heal itself. Now my secret hope doesn't feel quite as silly.
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