My first day without Sovaldi/Riba. I feel nervous inside. I felt protected while on treatment, now I'm on my own?!?
I'm a G3 , 52 , female on HRT, IL28 CT, fibroscan 3.2, no cirrhosis VL before TX around 600,000. I did interferon and RIBA in 2009, was consider a slow responder but I did get UND between week 8 and 12. Of course the virus came back. This last March I started another 24 weeks TX with the new SOC / sovaldi - RIBA .
I didn't miss 0ne pill: 1 sovaldi and 3 RIBA at 6 am and 2 RIBA at 6pm. That work fine for me. This is the time a get up for work.
The first week I just felt different with headache and with my normal anxiety and of course lack of sleep that stayed during treatment . I took an Ativan nitghly at a very low dose, that help.
During treatment some days I had so much energy, I felt so great At 110%! Than the roller coaster started, ups and downs, somedays extreme fatigue than great energy... I was able to stay at work full time, no sick day, just times for hep c nurse visits. My blood work were always vey good . I didn't have to reduce the RIBA doses . Like others I was UND at week 4 and 12! I should be trill about these results but once you get the relapse word .... It is hard to forget
The last few weeks have been harder on my emotions, I cry, confuse , no tolerance , angry , overwhelm if to many people. I just want to hide!! I don't really like who I am now. I know it's the RIBA and this will go away. When I read people -relapse with new SOC a feel pure panic inside ...
Tonight I go for EOT blood work . I know the end result is out of my hand, I did the best I could do, but the next 12 weeks will be very long with some anxiety !!!
Have a good day!