As many of you know, I have kept statistics on members treating, primarily with triple therapy, since the PI's were put on the market in May, 2011. You can view these stats in pictures in my profiles. I am hoping that a lot of people will see this post and update their stats. A lot of the 24 week'ers are getting their 6-month post results now and I have recorded what I see the posts Pooh helps tremendously, or I would miss a lot.
Unfortunately I have not been diligent about members who started in 2012. I have a few listed who started in the beginning of the year, but that is all. Unfortunately, there are tons of people who I put on the list and dropped off the radar that I wonder what happened to. I would love anyone to post their stats, good, bad or ugly so we have a record. We have more members here than individual doctors have and I think it is important for us to see the successes and failures.
I would like to add people to the list, but only if they are through or almost through or have had to terminate treatment early.
This is what I need:
Genotype, name of PI, start date, pretreatment VL, # of previous treatments & whether you relapsed, had a breath through, were a nonresponder, or a partial responder, the state of your liver (grade and stage), and if you had an IL28B test, the results of that.
During treatment I need the results of your VL test, and, if you had the standard HCV RT PCR <25 test, whether is actually said the wording "UNDETECTABLE." I also would like to know your lowest HGB and whether you had any dose reductions or rescue drugs. YOu can add anything else about sx but as you can see by the spreadsheet, I only have limited space.