"Bali - is it your intention to do this treatment as a choice to live with the Hep C rather than do treatment either temporarily or permanently?"
Dear Trish,
When I first was diagnosed in June I was told by my hepatologist to do interferon tx
and that I had a up to 60% (gt4) chance of SVR. My very first question to the
hepatologist was what I should do if this sx ladden treatment won`t work and
there was a big silence in the room.
It was very clear to me right away that more important than doing interferon was
to figure out what to do if it failed me. I do not want to do this like some of the other brave
people like Mike Mhundall (spelling) who`s health was severly impacted by tx
and than had to pick themselves up to find another way to live with this.
I much prefer to go after plan B while I am healthy and energenic because it is not
easy by all means to find such plan B because you are totally on your own.
To get back to your question, I have not decided yet if and when to do interferon.
Right now I am doing Nitazoxanide + Dr. Berkson and for the first time in a year
I see a dramatic drop in ALT/AST plus overall improvement. It just happend so
I still have to see how low I can get it and how long it will stay ect....
Who knows maybe I SVR with Alinia it happend to some gt 4s and they
did not have additional support thru ALA IVs or modern chinese medicine.
Chances are not great but nobody really knows anything for sure unless
you do it and live to tell your story.
It amazes me when I get these black or white questions. The truth is the whole
Hep C chapter is one big giant grey zone everyone has to somehow navigate thru it.
Maybe I will add SOC in 2 months , maybe I will add it in 4 months , maybe I will
wait for PIs , maybe I won`t do it at all and wait for interferon free tx.
All depends on how things work out one lab report at a time.
I prefer to row my own boat.
Does this answer your question ?
Ive heard of "drug wars",but this is getting ridiculous.Looks like big phama and the health food industry are always at war.
Slade Whitfield
On the path to the greatest nemesis, two enemies will walk together.
Just asking. Do You? I could be wrong and maybe there are people who work for the pharm companys. I doubt it but you never know.
You wrote:
"To: jdwithhcv
You were involved in the original thread. Whats the difference? You wouldn't be one of those people involved with the drug companys are you? Strange to me how someone without a vested intrest would want to be so involed with this discussion."
Now you write:
"I Myself don't believe anyone here works for big pharma. I only pointed out that there are some that do."
How do you reconcile these two statements?
Apparently we've got loads of people on either side of the issue who are no longer posting because of this thread. Are they not posting by virtue of some sense of moral offense? Or is it a boycott against censorship, or lack there of? Maybe some of these folks would post here and let us know?
I Myself don't believe anyone here works for big pharma. I only pointed out that there are some that do. I was trying to point out that people like HR and Mhudnall brought alot of good info and I for one miss their imput. I don't blame them for not wanting to post and take all the crap when they are like others on this board trying to help. LDN is something that I learned about on this board. I asked Dr Berkson about it but he said it wasn't part of his protocol for hep -c. I did get some 3 mg from and and took them for a few days but they kinda made me feel funny so I stopped.