incivek failed

[Roberttherock]

I just received bad news.  I finished treatment with incivek in Jan. received 6 mo blood test, relapsed.  I was undetectable at wk 4, 12, and post tx.  I am just totally crushed.  I have no idea what to do next.  This was  much tougher to deal with than previous treatments.  I was so hopeful. I hope the rest of you get a better outcome.    

[frijole]

rock, I am sorry.  Especially when you were UND at weeks 4 & 12.  Do you know the sensitivity of those two test?  If they were the standard <43 tests did the lab report specifically use the words UNDETECTABLE?

What happened on your first treatment (S?) When did you clear, were you compliant, do you have any other issues that decrease your chances of clearing?  

Again I am so sorry .  Dealing with relapse, especially when one has done so well on tx, is devestating.  I hope you take time to regroup and be drug free for awhile.

frijole (bean)

[ceanothus]

Oh man, I am so sorry to hear this. I keep thinking about how I would feel (and it could happen to me too), and if it was me I think I'd have to spend a few days crying and wallowing in self-pity before I'd even be ready to try to pull myself together. Everyone talks about the happy dance when we SVR, but on the flip side it also has to be okay to just cry and complain a while at first if it doesn't work out. Do whatever your grief requires now and then after you've let some of that out you will be in a better position for considering your next step for healing. I hope the period of grieving passes quickly for you and that your doctors soon help you plan another way to beat this dragon. You have all my sympathy and my best wishes too.

[Roberttherock]

Thanks for all your comments! I want to get as much information out there as possible.  I did 24 weeks on incivek because I was RVR at 12 and stayed undetectable at 12 weeks. On the Peg / rebitrol treatment I relapsed at the end of treatment.  I was also asked if I got monthly blood test, no only post tx and at 6 mo.  I will try another treatment when I see something that has a good chance of working.  I have moderate liver damage so I have time.  I don't drink, and exercise every day and try to eat well.  Thanks again for your support and hope you all do well.

[copyman]

Like the others I'm sorry for your bad news. I know it is a shot in the dark but did you re-test? I would immediately draw new blood and test again with a different lab,  using the most sensitive test the lab offers.

Best of luck

[BoceprevirGal]

I'm so sorry for your loss.   I am thinking that the new Interferon free Tx will be here soon, so keep up the good work, with your healthy life-style.

[belle19]

so sorry for the news.  take care.  belle