need some input here please

[salvo]

I've been on .5 on the shot and 600 mil in the morning and 600 at night and one trial pill for platelets, for the last 4 months.I'm going to miami for this trial and was treated OK in the beginning but now I have to wonder.Last month I was going again to pick up more medicine, but unfortunately the person that takes care of me, was not there even though 2 weeks before that day I told her I would be there on that friday so she said OK and that was the end of it for that conversation.When I got there after traveling for 3 to 4 hrs round trip, everyone kept asking if I had an appointment but of course I did, I replied and to make things worse, the others that were scrambling to help sent me for a couple of tests just to sit in the hospital for another 3 hrs.Got one test done and I canceled the other because the doctor didn't sign the script, although I'm sure its the person that take care of me, that signs.OH by the way, went there for nothing, they said they would fedex it to me, before I run out.Now I'd like to go back a little, hope you can follow. The head doctor that I went to see and put me on this trial, did a lot of figuring with #'s and told me I was safe and I would not need a transplant and hopefully this med will do the trick this time around.(after 10 years, was the first attempt). I never got a biopsy this time around and the scan that they use in the office, and why I dont know. (Let me go forward again). I complained to this doctor that things were not going to good, by the way I was being treated, going there and got no medicine and just giving the run around, and he said to call his nurse next time and she would fix it.To make it a little shorter, I did call and it seemed it was almost impossible to get her on the phone.Before you know it, the changed my app. to see the doctor  3 months earlier.I kept my appointment and was there at 4 pm but almost never got to see the doctor again but asked another doctor to see me after 2 hours.When I asked to speak with the regular doctor he was not to happy cause it was late, and when I complained again, he made a 100% turn around.He was not to polite and gave me a story that I should be "GRATEFUL"  for getting all this med. for free and kept sticking it in my face. I'm not the one to hold back, but this time I did.I'm really disappointed with this doctor for treating me as he did. Now as it stands, I called to find out if I can pick up my med. this friday,12/2/2009 and once again could not get someone to answer, but after 2 hrs of calling I finally got the doctor himself.I told him I needed my med., and could not find out if I should go and also asked him, about my throat which is bleeding.He first said well its Ok to spit up some blood but maybe I should be looked at FRI.-------Basically you have most of the story, but my main concern is this, Since I never got a biopsy done this time, and when I told him about my bleeding, he got a little wild again, and asked if I wanted to stop my med? and of course I said no but it would be nice to get information as promised after 12 weeks, so I could make a decision and why is it taking so long? and that was promised for this friday too.Now the other statement he made, that if I stop the med. do I want to get started on a transplant? and Of course I chit.He said in the beginning I was safe with a "9" but now he is asking me about a transplant. I dont get it and when I said it to him, he said a 9 is OK but a 10 is a transplant.(I dont get that also), is he suggesting that if I stop my med I will need a transplant? and if thats the case, is it because my liver got worse from the med.? Why did they never give me a biopsy? I'm sure I have lots of more ? just a little up set with all that going on and pretty pissed that this is got to be the way, and I'm just not understanding whats going on.----Sorry for such a long post and hope you can follow.

[Rockerforlife]

What was the question again?