telaprevir? incivek

[jemaggie]

Started yesterday on the triple combo, they have it down as telaprevir, but that is just a different company's name for incivek, hoping that i can get thru to week 4 and have the required response, hope all you other heppers out there are doing well, any thing i shouild be aware of, didn't sleep last night, had terrible pains in every part of my body, but i have spinal stenosis, so i said i had spinal stenosis on steroids, boy the pain, has eased a bit now, so here's hoping, and will be aware of it next week when i have the next injection, xx

[lrup1952]

Hi, I am also on tx with incivek and while it was not pleasant with the exception of week three it has been doable.  I had a hard time also with the 20 grams of fat but knew the importance of it so made it work.  The water really helped me and I continue to keep it near me and drink it at all times.

The first shot was in my dr. office and I didn't do the tylenol and paid for that shot.  However after the first shot, I took the tylenol and haven't had any further problems with feeling so bad.

I am now on week 23 and hanging in there.  While I have muscle aches in my legs and my back is giving me a fit I continue to work and try to walk everyday although some days are harder then others.  Will probably do water therapy to help with legs and back.

For each person sx are different so be prepared to stay on top of them but I found that not fretting  about what may not happen helped me.  I also stopped counting weeks because it seemed like the less attention I paid to it the faster the weeks have gone.  I am now almost at the 1/2 way mark (48 weeks) and it is hard to believe.  

You will find your own way of dealing with it that works for you but the folks on this site are so gracious and helpful and know so much about all of this that you are in good hands.

I wish you the best and can't wait to hear about your 4 week UND!!!

Best, Linda

[jemaggie]

anyone got any ideas, going crazy, have started to get a rash and  it's driving me crazy, done everything i was told to do, only washing in aveeno bodt wash, using aveeno moistureiser, have taken a zirtec, the heat  on the rash , you could cook an egg, can't get any cooler, i am frozen, anyone know what i can do-- thanks guys xx

[jemaggie]

having trouble with a couple of bad rashes, have done everything they have told me, only used the wash and moistureiser they gave me, have taken a zirtec, but it's driving me crazy, i'm freezing cold, but the rash is about 100 degrees, anyone know what i can do, i would like to sleep tonight, hugs xx

[jemaggie]

thanks, i hope i do, this bloody rash started this afternoon, and the weather is freezing but the rash is so so hot, and i have used and done everything they gave me, have taken a zirtec, but i am not going to get any sleep tonight i think and the heat in the bed will make it worse, any suggestions, thanks

[Conanhcv]

Have you talked with your Dr.? Hopefully it's not allergic.

Have you tried aloe? Get a plant (bigger is better) cut off a piece and squeeze out the gel onto your rash.

They also have benedryl in a spray.

Hope you find an answer.

[Advocate1955]

My husband had the moderately severe rash with Incivek as well.  He used a prescription ointment called Triamcinolone, and a prescription antihistamine called Hydroxyzine to calm the rash down.  Here are some other ideas from others on this forum as well.  I put them in my journals:

http://www.medhelp.org/user_journals/show/333004/Incivek--Ideas-for-Managing-Rash

Advocate1955