I just don't understand if they have medication to fix everthing else why do they not have a pill to fix our nerves and immune system for us? I am just venting and I keep seeing flu shot signs and it really bugs me. Julie
Hi I too have dry eyes and cannot open them in the morning. I put individual ViscoTears in them, as if they are just from a bottle they have a disinfectant in them which if you use a lot, are bad for your eye. Meaning they could irritate it (So my doc says) The individual ones are steralised and therefore you can use all day. I sometimes put them in every hour.
It is very strange all of this I have a dry mouth too anybody else?
Chris
Thanks PFH - I have been using Visene, which does not help very much. I'm going to pick up some lubricating tears today. Maybe that will help witht this eyeball pain and dryness. Thanks for the suggestion. Jackie
Greetings,
Jackie-yes! My eyes have been hurting a lot too. The entire eyeball hurts, socket-like pain. I've seen an eye doc and was diagnosed with dry eye, which began with all of these other neuropathy symptoms, indicating my autonomic nervous system was also affected. The eye doc said it could go away, eventually, but can take a looooong time. He mentioned 3-5 years, but really, truly-who knows! Hang in there and use loads of artificial tears (NOT Visene, or any other red eye reducers, just artificial, lubricating tears). But, yes, my eyes are the biggest symptom right now too and it's so darn painful! I work on a computer constantly, which is horrible for dry eye. This entire experience has made me really question my life, lifestyle and strive toward happiness instead of complacency. So, while it hasn't been fun, perhaps there's a reason to it.
Yes, it is frustrating to feel great and then slide backwards. But, as has been said on this blog and as my neuro has told me as well, nerve pain comes and goes-that's how nerves recover. Nerves don't get better and better in a linear fashion. They seem to get better, then slide backwards, get even more better, but may be retrograde again. But, overall, the upward trend continues, with some troughs. Hang in there, don't dwell on it too much (I know it's hard), but before you know it, you will improve!
Carmen – I too am sorry you are having a set-back after having so many months of feeling good. I do believe that this will pass and I agree that since we have times of feeling almost 100% than I think eventually it will all just go away, CAN’T COME SOON ENOUGH!!. I can’t believe we are all going on a year with this horrible thing. I know how discouraging and scary it can be having felt good for so long and then just get blindsided with the symptoms again. Although I have never had months of feeling good, for me usually it’s a couple of weeks or so, but I would imagine the feelings would be about the same. My eyes are driving me crazy lately, I feel like I can’t keep them open and they are so dry all the time, they are my biggest symptom right now, I’m sure next week will be something else. Hang in there. Hope you are starting to feel better since your post. Jackie
Sorry and sad you have had a relapse. The fact that you felt 95% better for 3 months is so encouraging though!! Stay postive the mental state has alot to do with your healing. We are all human and we all break down but just try to stay positive and remember all your good days. We are all hitting the 1 year mark and I think that is depressing for all of us but I am not giving up. I have gone back to just tingling in my feet and leg thank goodness. Take care, Julie