this is frustrating every 6 months i lose another15% of my hearing.and they wont even monitor my son.i know that when i take the penecilin feel like a human again my stomach feels better and my eyes do not hurt.
it just seems to me there has to be some method of detecting things in the throat and the sinuses .is strep the only thing they can find .how is it when a throat culture for strep is done they can see more than white cells?
why is it drs will not test my throat for anything other than strep .they lie to me and tell me they are checking for gono and chlamydia but when the records come back they say strep test.how would they ever find pharyngeal problems if they are not willing to look.?they somehow manage to avoid any test that will tel me what is in my throat.my sputum test came back as retest test not performed it contained squamous cells and they said it could contain bacteria that would not be that of lower respiratory infection.they just will not do any test that will show the infection.
i did a western blot and have the p41 p31 and p58was indeterminate.wich is usually considerd a positive but my titer was .2
sorry about caps it makes it look as though im yelling .
THERE ARE ONLINE SITES WHERE YOU CAN ORDER TESTING.I diagnosed someone else i met on this site we corrrespond via texting and his symptoms are identical to mine.so i told him to test for hhv6 because i thought his symptoms were so spot on to what mine were and the evidence that displayed during were uncanny.so he did and he came up positive .meanwhile i was busy ruling out other things but when i heard that he had tested positive i knew from the type of symptoms we have that i would most definately test positive for this too .pretty interesting since we have never met in person.
then i saw the symptoms in my son develop and i had to force his dr to test him and he was positive so i found it for three of us if i could get my wife to test im willing to bet she has this as well.but this goes to show if there was a dr who practiced this type of diligence they might actually be able to help their patients.
when i go to the drs they all say that since you have so many things going wrong you dont need help .it must be anxiety.so if i had no symptoms then i still wouldnt need help.so its a win win for the drs .i dont beleive i will ever get help.ive been to two of every type of dr but none of them care .i have the gp who was the jerky one he gave me some antibiotics because i told him i probably have another six months of hearing left if im lucky.but he does not know what to test for there are a few ideas that i have but he wont listen to me i know i will find at least one more thing on my own after all i am the one who found the candida in my blood as well
my sons immune system has been weakend by this apparently he was exposed to lyme at some point because his titer is just below being positive and his hhv6 is active again .it came up current infection.so if his immune system is weak could his lyme disease be going in and out of active infection and doing severe damage.i dont think drs know enough about hhv6 .because the knowledge they repeat to me does not correspond to the information i have obtained from the hhv6 foundation.what i dont unnderstand is why they do not try acyclovir when people with encaphalitic symptoms due to herpes .it could help gain control to limit the amount of damage done to the patient .also why isnt there a study being conducted on antiretrovirals for the treatment of herpes when we know that acyclovir helps fight hiv.it would make great sense to test this theory and possibly lead to a cure for herpes .hhv6 is a very bad form of herpes wich can cause ms, dementia, hodgkins ,cancer,and even aids .
i will just post and whenever you can get to it you can get to it i am thankful and greatful for your help .i know that you have your own issues going on and i understand .you have helped to give me the strength to keep driving on when the pain gets to be too much your ideas give me hope and for that am very greatful.hope you are doing well thanks mkh9.