Muscle Spasms

[mizgahobin]

Does anyone diagonased with lupus suffer from crazy muscle spasms and twitching.

[mammagunn]

Wow you sound a lot like me, I started out with the Scleroderma symptoms, I have horrible Reynauds, now to the point of pain when it starts to "thaw" out. Is affecting my esophagus, Doctor describes as a lead pipe when food goes down, no peristalsis anymore. Most recently had fluid around my heart, Tamponade occurred, had to have "windows" placed in my space around my heart. Have had all the + tests for lupus. But now my concerns are of horrible bloating /gas, gets worse as the day goes on..also have started to have severe spasms in lower legs /feet...also muscle twitching...any thoughts on any of these??

[karajo]

Yes, I would definitely push the issue.  Just because there is a neg. ANA does not totally rule out lupus.  

[MelMarie123]

So, I am 40 now and I was diagnosed with Fibromyalgia over 10 years ago, about four years ago I had to have my Gall Bladder removed which is supposed to be an outpatient surgery and ended up admitted to hospital with sever pancritis, liver and kidney failure.  I have been diagnosed with brisitus, arthiritis, vitamin D deficiency and Perenimious anemia (b-12 definciency) . I have discoid rash on my elbows and forearms, severe migranes, severe mucle spasms and horrible, make me cry cramps.  I have severe fatigue and can not make it through a day without a nap.  I had an ANA test done 10 years ago that came out ok.  Because of the negative ANA test that I had 10 years ago the pysicians I have seen say it can not be Lupus.  I am convinced it is Lupus,  is it appropriate for me to demand a ANA be done again?  I keep having spurts of pancritis, and my liver and kidney function are never normal.  

[karajo]

I suggest you get a copy of the actual lab work.  I've had drs. tell me everything was normal when it really wasn't.  I often wonder if they really look at that stuff.  I would also keep a daily journal of your symptoms.  Along with your activities.  

[hamheff]

So I went to the doc. Mentioned to her that I have tested positive for Lupus in the past and also negative. She seemed very interested in my livedo reticularis which I did not realize(at the time) could be a sign of Lupus.... Anyway, she said the symptoms were there and she was going to do a full panel blood work. I've been calling for 3 weeks for results and keep getting told the doctor is not in or results aren't ready and finally today, the receptionist says the doctor left her a note saying the bloodwork was fine, book follow up appt and MCP ultrasound.....
So now, what I'm wondering is - does that mean it's not Lupus? Because the receptionist never said "it's not Lupus" Can the blood work be normal with Lupus?  I don't understand why a follow up appt would be necessary if everything is "normal".  I assume the ultrasound for my hands is because they hurt the worst and I have developed nodules (which I have also heard is common in Lupus) Just not sure how much longer I can continue to wait. It gets harder every day and the doc she doesn't want to start treatment without a diagnosis so the only thing I take for pain management is advil...
Anyway, just wondering the opinion of others - Anyone else have this happen? Should I be concerned?

[TeppiK]

I was diagnosed with lupus 2 years ago.  I have raynaulds and fibromyalgia as well.  I noticed my tremors before I was diagnosed. I have tremors in my hands, but when I lay down, I feel tremors, almost like I am shivering, in my shoulders and ribcage, I feel like my muscles never relax.  My muscles are always tense. I saw a neurologist and he put me on an antisiezure medication which, after one dose, I WILL NEVER TAKE AGAIN!!!!!  I was so groggy and dopey...  i think I will try magnesium and ask my primary for a muscle relaxer.