I don't think it has to do with lying down or sitting up for me -- it's the clock that matters: I feel like h*ll in the morning, and then better as the day wears on, until evening when I often feel quite good.
I'm now about 6 weeks off abx, and I can see the Lyme creeping back -- interestingly I had a symptom today that I had forgotten about: feeling tired and itchy eyed and dull-witted, until suddenly around 3 pm, I started feeling better, and within a half hour my mind had cleared considerably. This is the pattern I had until I got on abx: 3 pm is the magic hour for me. There must be some pattern the bugs follows, because I don't watch the clock waiting to feel better -- it's just something that I notice when the fog begins to lift and I try to figure out what I can accomplish in the rest of the day.
All of my symptoms, which are neurological in nature worsen when I am lying down. The parasthesias get worse and the tinnitus in both ears are just horrible when I am lying down. Its weird and I thought I was the only one who this happened to. I am glad to know that I am not alone.
Yes. My all of my symptoms, sensory or musculoskeletal, show a weird posture dependence.
When I was having a lot of sensory symptoms, it was very obvious. The more prone I became, the further my symptoms would spread. If my foot was tingling while I was standing, if I layed down, it would travel up my leg. By the time things got "bad" for me, the tingling and sensory symptoms would spread into my torso. I spent months trying to train myself to sleep propped up, but I don't get comfortable that way.
Waking up when I had a lot of active neuro symptoms was often horrifying. I would get up several times a night. Getting up for even a few minutes would provide some improvement.
My sensory symptoms are under better control now that I'm about 4.5 months on antibiotics. But I still have a lot of stiffness. Now when I lay flat, I feel my joints start to hurt more. I wake up very stiff and sore. Once I am up and moving, I start to loosen up.
I don't know the physical origin of why my symptoms change so much with posture, but I suspect it is linked to systemic inflammation.
I have had the feeling of needing to stretch a lot - esp. in bed - it comes & goes.
My legs/feet are the 'need stretching' - most bits.
my first 'flare' - [which I didn't know at the time was a 'flare' ! ]- the top half of my body especially, felt like it had all tightened and inflated - esp. neck/shoulders - also all painful down to the bottom of my ribs.
I remember thinking at the time -'what the hell have I done' - I was frightened which caused more tension/anxiety. I still get frightened by it - 3 years down the line.